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I’ve absolutely experienced this. I’ve had ME since 1990. The first several years were quite bad, and I didn’t have any colds or flu during that time. Then I improved pretty significantly for about 20 years – I was still pretty sick and needed to rest several times a day and couldn’t exercise...

Agree with everything people have said here. I can’t imagine “doing too little” – the endless struggle is against doing too much. Especially when doing too much can mean standing up to brush my teeth, or getting myself a bowl of cereal. And there are endless temptations to do too much – to talk...

This is a fascinating question! Beginning 7/26/90 I had a vicious GI bug that landed me in the hospital for a week. Intense diarrhea for 8 days straight. When that ended, I was really wiped out, as expected, but each day I felt a little stronger. Then I woke up on 8/9/90 feeling like I'd been...

The Ed Yong piece is probably the best opinion piece I have ever seen about ME/CFS. Here's a link for those who don't have a subscription: https://www.nytimes.com/2023/12/11/opinion/long-covid-reporting-lessons.html?unlocked_article_code=1.FE0.GhON.s75HamWRJeia&hpgrp=c-abar&smid=url-share

I'm too sick to swim at all now, but for many years I could tolerate swimming better than any other aerobic activity. Swimming for 10 minutes or so caused far less fatigue or PEM than walking for 10 minutes. Sometimes I would even feel *good* afterward (a shockingly rare experience!). I'm not...

Excellent article in the Los Angeles Review of Books about the trauma of illness and the double edge of remission. Written by Megan Moodie, who shares her own experiences with chronic pain and illness...