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  1. Sly Saint

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    I suspect they will follow this example: https://www.sussexcommunity.nhs.uk/patients-and-visitors/resources/patient-resources/introduction-to-me-chronic-fatigue-syndrome which has full backing of BACME, the Sussex and Kent ME/CFS society, and its medical advisors who incl Alastair Miller, (the...
  2. Sly Saint

    Article: First cream created to treat hand eczema approved to be rolled out on the NHS

    Unfortunately but not surprisingly (for me) I wouldn't be able to use it because of the base cream ingredients. https://www.tga.gov.au/sites/default/files/2025-12/auspar-anzupgo-251218-pi.pdf For those who maybe have problems with emollients that your skin tolerates I found this useful...
  3. Sly Saint

    Researchers open ‘window to the brain’ with powerful cancer tech

    https://www.news-medical.net/news/20260202/Researchers-open-e28098window-to-the-braine28099-with-powerful-cancer-tech.aspx
  4. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2026

    DWP disability PIP assessors quit in droves over being 'despised' and 'de-skilled' https://www.msn.com/en-gb/health/other/dwp-disability-pip-assessors-quit-in-droves-over-being-despised-and-de-skilled/ar-AA1Vqnp0?ocid=msedgntp&pc=U531&cvid=697f73e8c5594fdcac032046b06cb919&ei=128
  5. Sly Saint

    Effects of a Rehabilitation Programme Focused on Energy Management in People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome 2026, Portugal

    The study focuses on rehabilitation nursing care for adults diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a home setting. The objective is to evaluate the effects of an individualised rehabilitation programme, which aims to empower participants to manage their energy...
  6. Sly Saint

    Why some people with ME/CFS react more strongly to medications

    It definitely is and has always been, well, for at least the last 25 years. see also "People with ME/CFS may be more intolerant of drug treatment, so any medicines should be started at a lower dose than in usual clinical practice."...
  7. Sly Saint

    NHS Sussex Community NHS Foundation trust: Myalgic Encephalomyelitis (ME) and Chronic Fatigue Service (CFS)

    It all reads like pre 2021 NICE guideline update(?) eta: link https://www.sussexcommunity.nhs.uk/patients-and-visitors/resources/patient-resources/introduction-to-me-chronic-fatigue-syndrome where's a yoda emoji when you need one? eta: there is a feedback button right at the end of these...
  8. Sly Saint

    Genetics and environment distinctively shape the human immune cell epigenome, 2026, Wang et al

    https://www.salk.edu/news-release/how-do-nature-and-nurture-shape-our-immune-cells/
  9. Sly Saint

    A weird, itchy rash is linked to the keto diet

    This is common knowledge I think. Keto Rash (Prurigo Pigmentosa) "Keto rash, also known as prurigo pigmentosa, is a rare skin condition that can occur in individuals following a ketogenic diet, characterized by red, itchy lesions primarily on the trunk and neck."...
  10. Sly Saint

    Why does some ME/CFS become very severe? Discussion thread

    I don't think a 'range' of definitions was necessary but one that only says that person is 'almost entirely bedbound' is not the same as someone who is dependant on care, often needing help with personal hygiene and eating. Even that I think is down playing 'very severe' ME as we understand...
  11. Sly Saint

    Why does some ME/CFS become very severe? Discussion thread

    I think the usual figure quoted is 5%. That is not the complete definition of very severe MEA /NICE Interesting that there is no mention of cognitive problems whereas for severe it says: see dialogues https://www.dialogues-mecfs.co.uk/films/severeme/ (Examples of very severe whitney...
  12. Sly Saint

    Preprint ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing, 2026, Davenport+

    https://batemanhornecenter.org/new-cpet-guidelines-what-they-mean-for-people-with-me-cfs/
  13. Sly Saint

    Article: Vaccines trigger immediate changes in lymph node tissue landscape

    https://www.news-medical.net/news/20250818/Vaccines-trigger-immediate-changes-in-lymph-node-tissue-landscape.aspx
  14. Sly Saint

    Severe difficulties with eating in ME/CFS

    makes you wonder why they have medical advisers
  15. Sly Saint

    Measuring fatigue in clinical and community settings 2010 Chalder

    Abstract Objective: The Chalder Fatigue Scale (CFQ) is a widely used instrument to assess fatigue in both clinical and nonclinical settings. Psychometric properties of the scale and discriminative abilities were examined. Methods: A total of 361 patients with CFS and 1615 individuals in the...
  16. Sly Saint

    Article: Deadly bat-borne virus with no cure spreading in India with 'epidemic potential' as new cases emerge (Nipah virus)

    https://www.msn.com/en-gb/health/other/deadly-bat-borne-virus-with-no-cure-spreading-in-india-with-epidemic-potential-as-new-cases-emerge/ar-AA1UTm4S?ocid=msedgntp&pc=U531&cvid=6974deabb8044510a8cf74d9cdaebd2d&cvpid=714f8e1734aa4feff4bdaa3e86bfbfda&ei=6
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