I suspect they will follow this example:
https://www.sussexcommunity.nhs.uk/patients-and-visitors/resources/patient-resources/introduction-to-me-chronic-fatigue-syndrome
which has full backing of BACME, the Sussex and Kent ME/CFS society, and its medical advisors who incl Alastair Miller, (the...
Unfortunately but not surprisingly (for me) I wouldn't be able to use it because of the base cream ingredients.
https://www.tga.gov.au/sites/default/files/2025-12/auspar-anzupgo-251218-pi.pdf
For those who maybe have problems with emollients that your skin tolerates I found this useful...
DWP disability PIP assessors quit in droves over being 'despised' and 'de-skilled'
https://www.msn.com/en-gb/health/other/dwp-disability-pip-assessors-quit-in-droves-over-being-despised-and-de-skilled/ar-AA1Vqnp0?ocid=msedgntp&pc=U531&cvid=697f73e8c5594fdcac032046b06cb919&ei=128
The study focuses on rehabilitation nursing care for adults diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a home setting. The objective is to evaluate the effects of an individualised rehabilitation programme, which aims to empower participants to manage their energy...
It definitely is and has always been, well, for at least the last 25 years.
see also
"People with ME/CFS may be more intolerant of drug treatment, so any medicines should be started at a lower dose than in usual clinical practice."...
It all reads like pre 2021 NICE guideline update(?)
eta:
link
https://www.sussexcommunity.nhs.uk/patients-and-visitors/resources/patient-resources/introduction-to-me-chronic-fatigue-syndrome
where's a yoda emoji when you need one?
eta: there is a feedback button right at the end of these...
This is common knowledge I think.
Keto Rash (Prurigo Pigmentosa)
"Keto rash, also known as prurigo pigmentosa, is a rare skin condition that can occur in individuals following a ketogenic diet, characterized by red, itchy lesions primarily on the trunk and neck."...
I don't think a 'range' of definitions was necessary but one that only says that person is 'almost entirely bedbound' is not the same as someone who is dependant on care, often needing help with personal hygiene and eating.
Even that I think is down playing 'very severe' ME as we understand...
I think the usual figure quoted is 5%.
That is not the complete definition of very severe
MEA /NICE
Interesting that there is no mention of cognitive problems whereas for severe it says:
see dialogues
https://www.dialogues-mecfs.co.uk/films/severeme/
(Examples of very severe whitney...
Abstract
Objective: The Chalder Fatigue Scale (CFQ) is a widely used instrument to assess fatigue in both clinical and nonclinical settings. Psychometric properties of the scale and discriminative abilities were examined.
Methods: A total of 361 patients with CFS and 1615 individuals in the...
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