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Yes, please! Though the topic of these documents sound somewhat outside those I'm mainly focusing on in my writing, they fall right in my collection period, and will probably shed additional light on events. And I'm interested in collecting, bringing together and preserving any primary sources...

For @bobbler or anyone else interested to dive into this, the CIS (checklist individual strength) was developed in 1994 by the dutch group that was the most prominent in psychologising ME while reducing it to mere idiopatic general fatigue in The Netherlands in/since the early 90s,: Knoop's...

Same. GT translation of the German summary: So basically it sounds like: "Expectations" are at the center of our etiological model of your illness. That your illness is the result of "expectation" is demonstrated by you having illness symptoms and because the treatments work. [err...o_O]...

Would not be the first time the Dutch psychosomatic movement is vague about criteria, using CDC which means Fukuda. Rosmalen repeatedly stated they were using the "CDC criteria" for Lifelines, implying they were using the most recent ones without being clear that it was Fukuda 1994. (See e.g...

Nope! Brain glitch. I will adjust my post. (Edited to add: 2003 = CCC, so hence the mistake.)

[/S][/SPOILER] It's The Netherlands, so due to ignorance and decades of dominant psychosomatic narrative, I doubt wheter the average paediatrician knows what PEM means, I expect them to just translate that as "feeling fatigued after doing stuff". (Even more so if they were pediaetricians in...

I read the article as well, I liked how he explained the present crux of the matter: (It's nitpicky -the problem as posed still stands- but I may disagree with a detail of his comment that EBM was "designed to help front-line clinicians make quick decisions when they don’t have the time or...

I came here to say just this.

That fits with the theoretical idea at the time, when they first started to promote CBT for ME as treatment: that the treatment was cost-effective as it would have ongoing positive effect; they would help the patient over the first bump, after which the improvement would go on because of the...

Just some small news that I found encouraging to see. In the first chapter of the new book How to be disabled and proud (or at least kinda sorta okay with it) by Cathy Rea, which is a guide for disabled kids/youngsters, ME/CFS is mentioned as an example of chronic illness. ("Chronic illnesses...

Last week there has been a chat session with the head of the NMCB, Jos Bosch. "The interest was great, the questions varied and the answers very hopeful", according to the Dutch platform ME Centraal, who posted a report. Google Translate english version: The Sessions – part 1: Jos Bosch...

Pity I missed that and was not able to join. I would have liked to ask why he adopted the Oxford criteria term PIFS for ME/CFS? why he is collaborating with COFFI, an organisation to promote the ideologies of the psychosomatic movement (Wessely, Knoop, Van Der Schaaf, Wyller, Lloyd, Moss-Morris...

The author says there are no specific recommendations for ME/CFS in the very next paragraph, so I'm not sure why you feel the need to "correct" them: He does not specify exactly how basic principles weren't accurately followed, but he does state they weren't, and that is not for nothing. I'm...

I am not able to read the full paper atm, but some contextual things about it are very important to note, I think. Lead author, Barbara Stussman, has no background as researcher in these types of ilnesses, let alone good knowledge about PEM. She built a career on surveying the use of...

I've been following this on news & social media, and I just wanted to give my support and a virual hug to those who want one. I find it especially cruel and diabolical that Starmer poses himself as an ally and disability hero for cutting benefits for the fantasy that it saves disabled people by...

It's terrible to witness, it must be so surreal and utterly devastating to experience.

Good talk (flamboyant hand gesture incident and all;)), pity time ran out in the end. (Edited to add, also: the statements regarding the situation in America moved me.)

For me this actually was one of the things that stood out, the clear and open statement that this was indeed going on behind the scenes, that these people were a hinderance to executing the project, and they did that by way of launching "a full-on bid to try to stop the project". I hope...

Due to the topics I’m pursuing, I’ve collected and read on Engel. I still have to process all the documentation I have into a section on him beyond a first crude, incomplete draft (I’m working my writing way to it at an excruciating snail pace), but I feel confident in saying that that man was...

George Engel was deeply into psychosomatic ideology, and it was his career and way of working. What you remember and have been taught is the motte. (I'll try to add a post with some of his beliefs.) "Biopsychosocial" is a replacement term for psychosomatic; It funnels the views of the...