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  1. Arvo
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I think you might be referring to the first item in the reply Trish received: which I found and still find absolutely bonkers. I've been trying...
    Post by: Arvo, Apr 10, 2024 in forum: ME/CFS research news
  2. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Yes, this. The end result is the same, and while indeed it does matter on some points, it doesn't matter in concluding that up to today a series...
    Post by: Arvo, Apr 10, 2024 in forum: ME/CFS research news
  3. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Maybe there are two streams/factions? I can not explain it, but this is not the first time it seems like there are two movement/currents within...
    Post by: Arvo, Apr 10, 2024 in forum: ME/CFS research news
  4. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    The thing about the "deliberate vs fuckup" discussion is that a) both the deliberate and fuckup scenario are liquid, running over in eachother...
    Post by: Arvo, Apr 9, 2024 in forum: ME/CFS research news
  5. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I mentioned earlier as a side remark that Shorter's talk at the NIH sounded highly similar to the talk he gave at a notorious CIBA meeting in...
    Post by: Arvo, Apr 9, 2024 in forum: ME/CFS research news
  6. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Ha, it was not meant as a slap on the wrist, maybe more of a reminding nudge. Your remark was an immediate cause to post a reminder, but I wanted...
    Post by: Arvo, Apr 8, 2024 in forum: ME/CFS research news
  7. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I have no doubt this stigmatisation happens; bad researchers can't handle even justified criticism, easier to smear the already-marginalized...
    Post by: Arvo, Apr 8, 2024 in forum: ME/CFS research news
  8. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you! I am planning to stop doing this, but so far it's been difficult not to get back to it. I want to emphasise that I'm not after giving...
    Post by: Arvo, Apr 8, 2024 in forum: ME/CFS research news
  9. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you for that elaborate post, I find it very interesting to hear what you have to say about it. My issue with the paper contextwise is that...
    Post by: Arvo, Apr 8, 2024 in forum: ME/CFS research news
  10. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I couldn't reply any more yesterday, but your example connects to an answer I wanted to give. ME patients are not alone in this, it's an old...
    Post by: Arvo, Apr 7, 2024 in forum: ME/CFS research news
  11. Arvo
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    THIS (@bobbler, I wish I could triple-like that whole post)
    Post by: Arvo, Apr 7, 2024 in forum: ME/CFS research news
  12. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you for that addition @Laurie P! Very informative and illustrative. (ed. to add: it's also shocking that Koroshetz framed criticism at his...
    Post by: Arvo, Apr 6, 2024 in forum: ME/CFS research news
  13. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    To me it appears like a very hamfisted way to make a Walitt-caused potential PR disaster go away. (A scenario where Walitt felt that he was...
    Post by: Arvo, Apr 6, 2024 in forum: ME/CFS research news
  14. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Thank you Dakota15. It is the reference in the paper, so nothing new, but this seems like something @Janna Moen PhD might find interesting, as...
    Post by: Arvo, Apr 5, 2024 in forum: ME/CFS research news
  15. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Post 2/2: (Edited to add: eek, it got long! TLDR: the PEM of ME/CFS so far got sidetracked to a "how it feels" questionnaire study, designed by...
    Post by: Arvo, Apr 5, 2024 in forum: ME/CFS research news
  16. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Post 1/2 O my... Related to this: So, the lead author of the two PEM publications Walitt and Nath brought out, the ones in the study Q&A the...
    Post by: Arvo, Apr 5, 2024 in forum: ME/CFS research news
  17. Arvo
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I'm cognitively not awesome atm, but isn't the letter giving a somewhat different impression of what the project is? The letter implies it's...
    Post by: Arvo, Apr 4, 2024 in forum: ME/CFS research news
  18. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I think that might be too much to conclude, but it indicates that Nath was relying heavily on Walitt and was grateful that he covered Naths...
    Post by: Arvo, Apr 4, 2024 in forum: ME/CFS research news
  19. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    That is good to hear, thank you. It is possible, but essentially I can't tell you the motivations for hiring Walitt atm. To get a better...
    Post by: Arvo, Apr 3, 2024 in forum: ME/CFS research news
  20. Arvo
    Post

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I also realise (and see) that this info makes people upset and despaired. I'm so, so sorry if that happens. (I know it's not my "fault" but I do...
    Post by: Arvo, Apr 3, 2024 in forum: ME/CFS research news
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