Search results

As far as I can see there doesn't seem to be any trace of an award to him from the MEA.

Abstract Psychosomatic symptoms have become increasingly prevalent among adolescents; however, trends covering a longer period remain underexplored in Hungary. This study examines changes in psychosomatic symptoms among school-aged children using nationally representative data from the Hungarian...

Abstract Somatic symptom disorder, illness anxiety disorder, and functional syndromes are characterized by burdensome preoccupation with somatic symptoms. Etiological models propose either increased interoceptive accuracy through hypervigilance to the body, or decreased and biased interoception...

Full title: Feasibility and acceptability outcomes of the InMe trial - a randomised controlled trial in participants with subclinical eating and somatic symptom disorders Abstract Dysregulations in interoception have been associated with mental health disorders including eating and somatic...

Abstract Diagnostic labels in functional disorders are explored with particular reference to functional neurological disorder (FND). Use of the term ‘functional’ is discussed, and is compared with alternative terminology. Relevant considerations including avoidance of inaccurate nomenclature and...

Abstract Background No disorder-specific patient-reported outcome measure (PROM) has yet been validated for functional movement disorders (FMDs), leaving a critical gap in clinical care and research. Objective To validate the FMD questionnaire (FMDQ) in a prospectively recruited sample through...

The only two mentions of 'CFS' are in the references. "Fatigue is described as being overwhelming, distressing, extreme, not restored by sleep, multidimensional and part of a vicious circle where fatigue feeds and fosters itself.11–13" Ref 12 being Sharpe M. Cognitive behavior therapy for...

The Diagnostic and Statistical Manual of Mental Disorders first took its current form and format in 1980 when DSM-III was published (1). Subsequently and periodically, APA’s Board of Trustees would entrust a task force with producing an updated edition. Thus, 1994 saw the publication of DSM-IV...

Victim of 'Celtic Curse' spent years blaming herself for poor health A woman who believed it was her fault she was always tired and in pain has said it is a relief to learn in her 80s that her life-long health problems are caused by a genetic disease linked to her Hebridean ancestry...

Abstract Hereditary haemochromatosis is caused by pathogenic variants in the homoeostatic iron regulator gene HFE. Outcomes include liver cancer, cirrhosis and arthropathy, but penetrance is incomplete. Here, we use genetic data from >400,000 subjects to determine the genetic risk across 29...

The Kennedy Trust funded this study https://www.s4me.info/threads/long-covid-fatigue-is-not-predicted-by-pre-pandemic-plasma-il-6-levels-in-mild-covid-19-2023-freidin-pariante-williams-et-al.32650/

From the article This seems to be that review, https://www.s4me.info/threads/instruments-for-measuring-fatigue-in-people-with-rheumatic-and-musculoskeletal-diseases-a-systematic-review-of-measurement-properties-2025-machado.48650/ Dures is also an author on these studies...

Authors: Eduardo José Ferreira Santos, Bayram Farisogullari, Katie Fishpool, George Young, Coziana Ciurtin, Fiona Cramp, Emmanuel Oghenetejiri Erhieyovwe, Gary J Macfarlane, Jen Pearson, Emma Dures, Pedro M Machado Abstract Objective To summarise the measurement properties of instruments used...

You're not blowing it out of proportion at all, rather others are with the best of intentions minimising the hurdles in the way of achieving such a project.

As I understand it, a participant can't be identified from their genetic data, but people can request their data access consents to be changed. How that actually is achieved I leave to those who know how to do it.

We could put out a general request, yes. As far as I understand it, not from the genetic data backwards.

Except that the data has been anonymised, so siblings can be identified as such but not their contact details.

It was in our weekly PRIME meeting, not the recent webinar. And yes, I have accurately reported my impression of the conversation, you can get in touch with Chris himself if you would like to ask him the question directly.

This subject, of whole genome sequencing individual families, occured in the most recent PRIME meeting. The impression that I got was that this was not considered a priority activity for anybody involved in PRIME, which obviously includes Chris.

Last year I was offered the opportunity to be involved in these further efforts. My lack of capacity meant it was a non-starter in the first place for me, but even if I did have the capacity, the lack of interest and respect for the patient voice that I saw in previous meetings would have meant...