I wonder if this is the study I was going to be a participant in. I fitted most of the criteria when they were recruiting in 2015 but it turned...
I find this, as far as I understand it, very interesting.
This is making me glad to be a member of AfME and not MEA.
I have no words for the Neil Riley article. What on Earth? Is there no one at MEA who thought to challenge this? Do they not have any guidelines...
Yes, that is my worry for her.
I was just looking at amazon reviews of the book to see how it was being received (mostly good, 64% 5*). One review gives this quote from the...
Beautiful and important words, as always from @Naomi10
I didn't take this as implying failure on anyone's part but about acceptance and being ok with not being complete and 'sorted'. I hope Miranda...
Miranda on instagram today: 'Since working again (a very little bit at a time) I have been able to live out the treasures from my book. And they...
'They sort of see it in a similar category to ME which is also kind of a sort of difficult one in terms of....' I wish he'd let her finish there...
A lot of the diagnoses you've mentioned can cause fatigue. It's impossible to know if you do have CFS as well. But if you focus on trying to...
[ATTACH] Solange Knowles, Beyonce's sister, posted this on instagram in response to Shaun's post. She has a diagnosis of POTS Sjogren's and MCAS.
That's true. When my mum was an inpatient receiving chemo for lymphoma, she was told by an NHS physiotherapist that her emotions and mindset would...
If she does have a crash post-publication, I hope she doesn't believe it to be a result of the negativity that's been directed at her from pwME....
I could have written that myself. I feel the same and I think 'giving people hope' has to be realistic otherwise what sounds helpful can actually...
100% agree about wealth and ability to pace. I'm not saying there's a correlation between wealth and susceptibility. But of those who are...
I imagine Miranda does have more money than most but I think ME is a situation where it doesn't matter how much money you have. I mean, obviously...
I think my point here is that it's not Miranda who's the problem, it's the greedy 'wellness practitioners' who have targeted her because of her...
Interesting from Miranda on taking inspiration from Selena Gomez on talking publicly about chronic illness. https://www.bbc.co.uk/programmes/p0jx6t4c
Wow, I've never been diagnosed with agoraphobia. That must have been really confusing.
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