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I've always thought Post Exertional Neuro-Immune Syndrome would be a good one. But that might just be because I like the acronym. (So to speak.)

No, I really don't think you do. It's an easy assumption to make for somebody looking in on the outside: 'oh those people just don't understand how the mind and body are connected. They think we're telling them that their illness isn't real so they don't want to listen.' That's not what this is...

I am finding it depressing to have to write everything down as it is and not try and put a positive spin on it as I usually would when telling someone about it so as not to depress them!

If you filled out a PIP form, what did you tick for the questions where you need to provide further information? For example, 'Are you able to cook and prepare food? - yes or no'. The answer is yes to a degree but it has an impact. I don't know whether to tick yes or no. I will be providing...

Thanks everyone. They've texted me to tell me the form is on its way but its not arrived yet so I've been looking at a form online to help prepare. It feels like none of the options to most of the questions fit me so I will definitely make use of extra information boxes and provide other...

Has the PIP assessment form changed in the last five years? I'm applying for PIP and the form seems quite different to last time I applied.

Finally! BVDK is a grifter, he was discredited once for poor and unethical practice and then still somehow managed to come back with this book. He's since been fired for bullying and yet still somehow sticks around. I think it's an attractive theory to many people so the scientific accuracy...

This would be good, I'm currently struggling to get my ferritin up without upsetting stomach.

My mum experienced pain in her legs and hip that she kept saying was 'in the bones'. It was pretty severe. A locum GP said it was probably muscular. A couple of weeks after this she was rushed into hospital, had blood tests, was given a bed on a ward and started chemo the next day. That was...

I'm sure that meditation does change your brain, I feel like it's changed mine. I guess this has been posted because of all the claims that you can re-wire your brain to cure ME, for which there is no evidence.

If I had the money, I would definitely rather fund the research so I could then choose whether to try it myself fully armed with as much info as possible. I also wouldn't trust any doctor willing to prescribe it to me at this point unless I was in this trial myself.

This is really interesting. I hadn't thought of looking at pts who had ME and then had treatment for cancer. How did you find pts for whom this was the case? Did you put a call out on social media? Edited for typos

Did you feel better at all when it was at 50?

The way this study has been run has been exemplary from start to finish, the communication with participants has been amazing and so appreciated. Very grateful to the whole team for everything.

Oh I've been listening to radio Scotland, didn't realise you meant TV! I don't have a tv, hope someone can update when watched :)

Oh I didn't mean to imply you weren't, I was telling myself that more than anyone else!

I feel the same. I strongly believe that this study is of value whatever the results because negative results tell us just as much as positive ones. I'm 100% sure that whatever the results, they can be built upon and are a step along the way. But I think it will be natural to feel a little...

I'm looking forward to hearing more, thanks for letting us know @Andy . (Also bracing myself for it to be quite emotionally exhausting!) Let's hope there's some positive media coverage. @Jonathan Edwards enjoy your holiday!

I keep being advertised this on social media. Seems strange so little info is given.

Article in The New Yorker: Mary had schizophrenia then suddenly she didn't. Anecdotal story about a woman who developed schizophrenia. Twenty years later she was treated with rituximab for lymphoma and her psychiatric symptoms lifted. No longer needed anti-psychotic medication. There follows...