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It was horrible stuff, this podcast, initiated by Harald Eia, a legend in Norwegian comedy. But this was not particularly funny. :banghead: He started by summarizing in four or five sentences, it’s women, emotionally unstable, could be a bad marriage, conflict at work, whatever, - then not...

Had my booster 30.12. Pfizer x 3. First dose was May 4’th, second 5,5 weeks after, booster close to 8 months after. After booster I experience more of the extra immunological stuff that I did when having shot one. It was 3-4 pretty rough weeks before recovering back to baseline. Two weeks in...

Been in the woods for weeks, but managed to read Saugstads piece today, and understand that NICE reached some kind of conclusion. Will read that and all comments later, but for now, I hope this will benefit all patients, and probably most of all patients in the future to come. It is paradox...

Nice interview and I appreciate the way he is communicating his story. Also good to see him involved in DecodeME. As we know, anecdotes may have vast significant differences, the timeline, on-set, to some extent also dynamics of disease, and other things. It may vary a great deal, and some...

Garner had SARS-Cov-2, he went to bed for at least 3 moths, then started getting better. That kind of start is not what a typical ME-patient have. That’s the majority of patients. And yes some patients are in fact extremely severely ill and totally incapacitated from the absolute get-go. Most...

Same experience here for ever so long. The night is awful in the sense that it is not restoring anything, and way worse morning than in bed the night before. As a main rule. The dynamics morning is improving slightly and slowly during the day, in general. Can add that sleep hygiene is optimal...

A brilliant article. And just very sad in perspective of ME/CFS, the 50 years gone by and so little investment and so much pseudo. It will be exiting to witness the long-Covid approach in time to come, and just hopeful that the magnitude, the optimal conditions for proper studies and science...

Yes, might be what Horning describes, distinct differences in the immune system, but it shouldn’t be underestimated that a SARS-Cov-2 patient probably will have a much better start, type Garner, than the usual ME-patient. That better start is due to swift certain diagnosis and if there is one...

Excellent letter! Thanks to all involved and all hard work.

Exiting. Couldn’t agree more. Same here. I was very fit when coming down. No way fitness-issues or detoriation has anything to do with ME. “Living ME” I resonate with the poor gas exchange-theory and poor supply of oxygenated blood. Immune system initially hammered, and lack of oxygen to...

Wasn’t aware of this thread before now. But it clearly puts science editor N. Kristiansen (forskning.no) unjust claims to rest, the one that ME-patients didn’t oppose this study, ref her latest piece regarding NICE on pause and the usual patient blaming (news from Scandinavia). I find this...

Interesting. Maybe it could boost more people within medicine to a greater portion of humility when it comes to the “unknown”, everything that can’t be seen by the eye or measured in a blood sample, although this is actually measured here on the double! This is perfect. The irony. Patient are...

This. It is very demanding to listen to Chalder, not to interact when she puts words that are untrue in patients mouths over and over again. Put a penny in her back, and dualistic blaablaablaa comes out. Best to let her speak to herself. It’s circular and brings absolutely nothing of value.

Overall ok, but wish the journalist would focus a lot more on the over-diagnosis and wrong ones. Why not challenge the quote from White: “we used the best criteria available at the time to recruit patients”. Is that really good enough today? Does that make Pace right for eternity, and does...

It’s so unhelpful, as the rest of her low standard “contributions”, that for some reason just is stigmatization of ME-patients as “troublesome”. If you have no interest in, and close to no knowledge of the history, this is what you get. A couple of comments to the obvious flaws in the text...

Yes, good points. Reading for understanding complex things can be almost impossible when in constant PEM. Experienced that a lot at work in the end before disability. I occasionally try to read some novels. That’s only on “good days”, more precisely “good hours....”. In tiny bits, 10-15 minutes...

I agree. Very important. Would like to know a whole lot more about duration, approach and so on. So often “miracle-stories” points to and sells this and that. But it’s my belief that many of these stories simply is down to a good start, meaning X and Y had the chance to be careful early on and...

Hmmm. Its an anecdote of a young person? If so, probably no need to be to critical, but a couple of things. “it is an extreme tiredness (loss of energy and motivation” Loss of motivation? No. Then I would say that I don’t like the boom and bust, cause it sort of sounds like you’re suddenly...

Ditto. Very seldom catching anything, but if, it will take longer time to recover than what’s expected “normal”.

That’s good. First, I do believe the statement “greater immune response after jab two are common for “normal healthy” people», to be something like a main rule and a valid description. But it also seems to be experiences in many directions, both for the “normal healthy” and among others. The...