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    CAR-T therapy

    Could they cure allergies with this? Aren't they also caused by "rogue immune cells"? (Sorry if this is a dumb question)
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    News from Germany

    Why are they still so hellbent on pushing an exertion-based therapy model onto patients that are barely able to reach appointments, let alone use shared bedrooms, without pushing their limits? The best place to 'learn' pacing (i.e. to not push your boundaries) is in the confort of your own...
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    BPS attempts at psychologizing Long Covid

    Maybe we could get Piers Morgan to set him straight :rofl: "Look Tucker, if this didn't happen to me, I would believe the same thing..." From Wikipedia: "In April 2020, Carlson's program surpassed Hannity as the highest-rated primetime cable news show, with an average audience of 4.56 million...
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    Do Cognitive Abilities Influence Physical and Mental Fatigue in Patients with Chronic Pain after Walking..., 2021, Catala et al

    I read this like five times, yet am still unable to figure out how their findings bring them to this conclusion. Looks like they are interpreting the results in a way that confirms their pre-held beliefs...Or maybe my walking patterns aren't good enough to understand this genius-level research.
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    The illness-disease dichotomy and the biological-clinical splitting of medicine, Tesio and Buzzoni, 2021

    Maybe we should break the flat earth-round earth dichotomy too and integrate the insights from the flat earth society into our round earth model.
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    Smartphone-based exercise intervention for chronic pain: PainReApp randomized clinical trial protocol, 2021, Moral-Munoz et al

    People who are in constant pain want nothing more than to be free of pain. Why would they stop an excercise program if it genuinly helped them? Patients don't need "Empowerment" ,they need real treatments.
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    ME/CFS Doctors in Germany

    Thought I'd share my experience at the Charite Berlin here: To be quite honest, my visit to there was a bit disappointing. I know they are painfully underfunded so I don't blame them for having nothing more than two borrowed rooms from the tropical institute (luckily the kind nurse/secretary...
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    Brain fog, cognitive dysfunction

    If not for this overlap in terminology between mental and physical illnesses, these people would have nothing to base their mind-body crap on. Brain fog and fatigue carry an entire different meaning for a depressed person vs someone with ME but we simply have no other words to express ourselves...
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    News from Germany

    I'm not really into politics- is there reason to hope for an Improvement of the situation for PwME here in germany from the new coalition? The former health minister jens spahn never acknowledged our existence, so it can only get better I presume.
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    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    I got an appointment back in july even though I said on the questionnaire that I'm not more susceptible to infections. Also, I didnt mention having a viral onsent only that it was an infectious one. Could be that they only changed it recently to include more subtypes, who knows.
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