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Are the institutions that award funding, subject to FOI? Interesting what would come up for ME funding and this person.

This doesn’t seem to answer the question though?

Thank your doing this research, the ME field seems to be very challenging being underfunded and with little support. Thank you aswell for explaining everything for even lay people. Hope you feel better soon and hope to see more of your research.

Do you mean before and after exertion?

The advanced metabolic testing, was this through your GP? If not, where could you have this tested?

So happy for Whitney! He has such a beautiful voice too I am glad he is very careful to attribute his improvement to the protocol and he is warning people. Maybe the OMF posts are more suited to the OMF thread?

How can this man spout this unscientific nonsense while having a scientific degree? Really baffling.

Have not read whole thread, apologies. Question; when will Decode ME go from a preprint to a definite publication?

Page 5 of the study mentions the file selection

Update on Sanne, the ME-patient who was denied TPN nutrition. Judge decides that drs do not have to treat Sanne with TPN. https://www.l1nieuws.nl/nieuws/3002454/rechter-oordeelt-artsen-hoeven-behandeling-zieke-sanne-van-enckevort-38-niet-te-doen

Jim Faas, insurance dr who is known for his support for MECFS patients posted this. Translation X-post Fresh of the press - In the three MEcfs cases the Central Council has retroactively awarded IVA This news seems to me important enough to share And can have far reaching consequences for...

Update on this case; Source: Steungroep.nl Dutch link https://www.steungroep.nl/nieuws/alle-berichten/nieuwsberichten-over-her-keuringen-algemeen/16-september-2025-uwv-kent-3-me-pati%C3%ABnten-met-terugwerkende-kracht-een-iva-uitkering-toe English translation September 16, 2025: UWV...

Would it be possible to add some white lines? To make it a bit easier to read?

Poor Sanne having to wait two weeks and not being able to eat? That seems too long for someone unable to eat.

Hope you’ll feel better soon, hugs

This is what I remember (not sure how accurate) - They are the only ME patient organisation funded by the government because they were the first to apply as a patient organisation for ME ptnts Apparently this is a policy in the Netherlands, and a second one can be subsidized if they have more...

And what about the Rob Wüst study on muscle mitochondria?

Apologies, if this is a stupid question. But could an elevated glutamine level explain why I responded very badly to taking l-glutamine?

No I can imagine. No woman, no cry right. I’m afraid I do not have knowledge of British law, otherwise I would love to do that. Do we have any other legal minds on this forum?

Glad you got back to your baseline. That must have been very tough. You are a beast, I am in awe of your vision and work. Hope the complaint will get a good response.