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Follow up to this

Has a study like this been done in MECFS?

Where would you suggest they focus their investigations?

That delay makes me wonder what's going on with SequenceME funding we don't know about yet... What do we reckon of the chances of EU Horizon funding for Sequence? This project sounds interesting, I hope it covers more than just the usual microbiome stuff.

That is a lot of funding. Good to see that kind of money in the field. Have to say though, I haven't been that impressed with the work coming out of the UEA so far. As a totally irrelevant side note the UEA has (or at least had) a great music venue and I saw all kinds of bands there as a teenager.

I got a lecture about how children with ME with overprotective mothers come in with crutches and wheelchairs from the doctor who diagnosed me with 'CFS.' The implication was 'you don't want to be like that' which is a powerful tool of manipulation to a 30 year old man.

Well, that's another way to throw patients under the bus. Oh you see your symptoms are because you're so privileged, you're not in a war zone (as far as I'm aware there's no war in India or Nigeria? Maybe they should have studied Sudan or Gaza). They acknowledged that there were huge cultural...

A huge amount of what led to me worsening my condition was this sort of thing rather than any kind of structured 'treatment'.

Whether we call it MCAS or think its a part of MECFS that doesn't need to be attributed to another condition, this is a concern I have, because I know severe people with very bad allergic symtoms who rely on those meds. I personally wouldn't want my ivabradine taken away from me either. I don't...

Alas

It's actually quite enraging just how much better it is than anything we're actually offered.

I do wonder if MS and Parkinsons aren't better examples. Is there any chance this former minister of health might be able to bend the ear of the current ones?

The psychobehavioural school has always been deeply misogynist, all the way back to Freud and William James and the Victorians. It's a dark wonder that you get people like Suzanne O'Sullivan and Trudy Chalder who are so happy to perpetuate the harm it does to women everywhere.

I've lost count of the amount of people I've heard of who have suffered serious consequences including death because of doctors assuming a psychosocial cause for their symtoms. And yes, it's driving more and more people into the arms of alternative woo charlatans. It's quite overwhelming how...

Psychiatry seems in so many ways to just reinforce strict social codes and stigma - in this case keeping a stiff upper lip and never showing you are scared or in pain, no matter how bad things are.

An example of a condition with a clear physical pathology that is being needlessly psychologised. This problem goes so far beyond MECFS

Yep, I literally can't talk to non disabled friends about how bad things are because I'll sound crazy. Agreed - appeasing these people just means that they coopt our campaigns to increase their budget. We need a total change, a clean slate.

Thanks for digging this up- could you possibly explain these charts like I'm brain foggy? (Because i am!) I can understand the plot in the top right but thats about it.

That's really odd and frustrating

Im very interested in the differences they claim to have found between LC and ME/CFS, especially as the LC group seem to have differences in T cells that seemingly go in the opposite direction to what we have speculated about might be happening in MECFS. Also, what could a role for monocytes in...