Search results

The point of this strategy is to control the narrative. By sharing and debating on social media - even though our points are strong - it gives the outside community the impression that there are two sides to this story - theirs and ours. So, Meaction UK wants to try out the strategy of no longer...

So, are you saying that the fact the Cochrane removed the IPD doesn't really change anything, or, worse, indicates that Cochrane never intended to publish the individual patients data in the first place? So, the removal of the protocol is not necessarily a positive thing?

Hi all, Adriane, the editor from #MEAction. Would anyone be interested in writing a summary of this article for the general public?

@leokitten - do you have any recommendations for a book or manual to follow?

@Rick Sanchez - MEAction is working on an article and, possibly, a call-to-action to encourage people to write the Danish Sundhedsstyrelse asking them NOT to recommend GET and CBT for ME/CFS with links to all the evidence showing its harm and ineffectiveness. Do you know if there is a person...