There's a new website up for the Long Covid Clinic
https://thelongcovidclinic.co.uk/
Had a look on Instagram for the Be Nourished outfit by Rachel Jessey and there's a video of her blending room temperature water to make 'structured water' It might be one of maddest things I've seen. But good...
There's an open letter going to SOM about the blocking of people with ME & Long Covid. Anyone can sign it
Form
https://forms.gle/RnxxbCMJPKqPNrnF7
Details are on Kirstie Sivapalan twitter
It was interesting they were so surprised that the pCR rates were so high. I'm not sure what they thought the fatigue associated with Long Covid is like? But that's the problem of calling it fatigue - it downplays the whole body shutdown awfulness of it. I wish they would focas on that - it's a...
It was 60g - I did the trial and it was alot of powder!
It's really rubbish they are justifying carrying on from "statistically significant' results from the CFQ. Another crap fatigue trial based on the CFQ
Although Gez has been an excellent source of information for those with Long Covid. He is definitely beginning to dabble with the dark side. If you watch the videos there's a 'eureka' sense when the type a personality is described and a bit too much glow of the converted.
He's well and truly...
Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul...
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