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So am I understanding your arguement Johnathan is "hEDS doesn't exisit because I haven't seen it?" Being skeptical is all well and good and objectivity is a valuable quality in a clinician. Being an ostrich isn't. I lost almost 2 decades of my life from dealing with doctors who share your...

You have no idea how much better I feel now that we're having this conversation @Invisible Woman. Not even people in the Ehlers Danlos, POTS, MCAS and gastroparesis support groups really seem to "get" where I'm at. Thank you. Normally people get to experience life before their health declines...

Thanks @Trish & @Invisible Woman (but you're visible to me ). The downsides of marriage are what keeps me from pursing anything, though the loneliness really gets to me and even more when I realize that I'll be completely alone when my dad dies. I love my animals and they're the one source of...

Like so many here I have really horrible fatigue that doesn't improve with rest, eating, sleep etc. I am ridiculously stubborn...I've had to be. I really do not want to become competely helpless and imprisoned by the fatigue, but doing what I've been doing for what seems like forever isn't...

I am both used to being exhausted and can't feel it when I over do it. Plus I'm angry that my body just won't cooperate and thus I push myself harder than I should. Combine all that with help basically not being an option this year and I wind up where I'm at now. The two things I am now 100%...

I also have gastroparesis, and it really makes things tricky. I've tried lying down, sitting on the floor and partially reclined. All cause issues, and I can't do more than 5-7 minutes before I get too uncomfortable. Or become suddenly too weak to sit. @Daisy Thanks for suggesting Insight...

I've started meditating for 10 minutes every day, and I feel a bit better emotionally. Physically not so much, to the point where there were several days I didn't feel well enough to meditate. Yeah, gastroparesis sucks. Just paying attention to my breathing and a body scan. I learned to just be...