@Perrier it certainly isn't fun not knowing when there will be a treatment. I was a young man when i fell ill. Now I'm an old man. Not sure how...
I never experienced "contempt" towards ME/CFS. I did keep my condition quiet in my work life, but that's because I was in a highly competitive...
I missed this point earlier. In my experience the term ME is virtually unknown and unused in the general US population and it is not that much...
As to your point that the CDC "now" uses the term ME/CFS as opposed to CFS that is correct and that's why I used the qualifier "at the time."...
I've had the best luck trying not to actively "suck" or bite on the sliver of ginger (which is tempting for me as I like ginger), but to sort of...
Having a sliver of raw ginger root to (not to suck on exactly, but in one's mouth) is a polarizing option, but for me nothing has proven better...
Yes, of course, this is an international forum which includes many places that have different histories with the illness and the terms used to...
I try to comfort myself by saying we did not even know that this illness was. AIDS was actively killing people who i knew in my circle and having...
ETA: Sorry I edited out half my post when trying to fix a typo. Stupid brain fog. I will try to reconstruct the first paragraphs I was 26 when I...
I think it is odd that I've never thought about a link given the amount of hydrating I do. I can't say that I'm driven by a feeling of extreme...
This is interesting. I've never given it a thought before, but I realize upon reading this that I always try to stay very well-hydrated and I...
I would love to have a personal physician who I felt had a basic (or better yet, advanced) understanding of what it is like to have ME/CFS and who...
In my own case, I've never experienced a "deep burning pain" in my legs (or anywhere else in my body) after exertion, nor do I have myalgia, so...
I have a persistent intolerance (strong chemical sensitivity) to acetone. When/if I'm exposed to this solvent I experience of cascade of negative...
Not sure, but I don't experience (as best I understand it) muscle fatigability weakness following exertion, I have fatigue and symptom...
We have very different perspectives over the term CFS. It was a huge step forward for the CDC to come up with a highly improved term from what...
With due respect, to refight old battles over the name and to claim that CFS is just fatigue reopens old wounds for those of us who live in places...
That isn't what CFS means--now, or ever. CFS is ME. Bill
Unfortunately, it appears that Dr Steve Olsen has retired from NorCal Kaiser. I tried to reach him up in Santa Rosa to see if he knew of a...
Like a metaphorical bandaid that protects for one day and then rips open the wound and makes it much worse the next. Certainly dead-end for me....
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