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  1. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    Mel Abbot of The Switch shares her highlights from 2025 on her Facebook profile for her business "Empower Therapies" Sadly she did not get best speaker thrice in a row at last year's National GP conference, (the optional CME one run by LP promoter Prof Arroll) not as well attended as the...
  2. hibiscuswahine

    Aripiprazole - Abilify

    The only studies are the one I have listed, I have not made any claim, there are no trials on people with ME/CFS who take atypical antipsychotics as I have stated many times.The only papers are on people with schizophrenia who take atypical antipsychotics. I am not sure what evidence you want...
  3. hibiscuswahine

    Aripiprazole - Abilify

    The increased life expectancy part of the equation is because if you treat Schizophrenia with an atypical antipsychotic, the patient can have a much more normal and healthy life. It treats both the positive and negative symptoms of schizophrenia i.e not just the delusions and hallucinations but...
  4. hibiscuswahine

    Aripiprazole - Abilify

    I think guessing is the problem, which defeats the purpose of the forum in my mind (after being told off numerous times for doing this by many members;) ) We don't want physicians (or psychiatrists) prescribing antipsychotics or any psychiatric medication without 1) clear evidence it will be...
  5. hibiscuswahine

    Aripiprazole - Abilify

    https://onlinelibrary.wiley.com/doi/10.1002/wps.20699 This is specific for the mental health disorder of schizophrenia, who as a group, are prescribed higher doses of antipsychotics compared to psychiatric patients without schizophrenia and these people require lifelong treatment which may not...
  6. hibiscuswahine

    Aripiprazole - Abilify

    I have prescribed Aripiprazole (Abilify) as an atypical antipsychotic in psychiatric practice (not for ME/CFS). This being In Aotearoa/NZ, a decade ago, prior to medically retiring. It could only be prescribed by a psychiatrist (and then by their GP on discharge from the public mental health...
  7. hibiscuswahine

    Why Chronic Illness Patients Feel Safer Talking to AI Than to Doctors

    I am not sure if neurologist mom will change the medical landscape anytime soon but screaming into the X void may be her only outlet. I am sure AI chatbots etc can be useful to summarise various things one might be interested in with one's chronic illness but how do you know the information is...
  8. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    Yes, I have communicated that to them and told them I think the members should be able to see the proof of this. It is interesting that this has come up after the ME Support FB group (the only national online group for pwME) has recently banned discussion of LP, The Switch and Brain Retraining...
  9. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    They are getting a lot of negative feedback on their statement on their Facebook page announcing this statement. They have thanked people for their comments and are going to revise their statement after further discussion with the executive committee. I see they have also had to change their...
  10. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    This Stuff article charts the progress of a TV reporter, off work with LC/ME, after a recent story of another reporter having to resign from her Stuff job due to LC/ME. The TV reporter has been struggling for two years with LC/ME and further covid infection and then basically becomes an advert...
  11. hibiscuswahine

    New Zealand: ME Support news

    I am not an active member of ME Support or ME Auckland but have been in their national Facebook support group a few years back, on and off for a couple of years until I finally decided that was definitely not the right place for me, on many fronts. I got the email but did not participate in the...
  12. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    ME Support have put out a position statement on Brain Retraining and has directed that there is to be no discussion of it and related "therapies" in face to face support groups or in their national Facebook support group. I have attached other files about this here. (link edited following...
  13. hibiscuswahine

    New Zealand: ME Support news

    We have split the following posts from ME/CFS support group online forums. This first discussion is about ME Support's work to make a policy on how it deals with the topics of brain retraining therapies within its Facebook group and elsewhere in the organisation...
  14. hibiscuswahine

    Jake Hollis - "The Fatigue Psychologist"

    Jake is doing another shout out for Pain Reprocessing Therapy but now he suggests it should be called “Neuroplastic Symptom Reprocessing Therapy" He is even suggesting pwME change the PRT symptom of pain to any symptom of ME/CFS. Isn't therapy so easy!;) He gives us an example from his own...
  15. hibiscuswahine

    Unwilling or unable? Interpreting effort task performance in myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Kirvin-Quamme et al

    Thanks to the authors and all members here who contributed to the debunking initially and in this excellent paper. So grateful we have people like you giving such reasoned and scientific arguments against these researchers.
  16. hibiscuswahine

    Jake Hollis - "The Fatigue Psychologist"

    Jake is promoting his practice again….. I, too, feel we are being taken back to the 80’s talking about type C personality, what? Populist nonsense. The research, (yet again in Psychology Today) is this paper, https://psycnet.apa.org/buy/2016-23898-001. He references this twice, it is Chalder...
  17. hibiscuswahine

    News from Aotearoa/New Zealand and the Pacific Islands

    Two bits of news from Te Herenga Waka – Victoria University of Wellington from Associate Professor Mona Jeffreys and Kahurangi Dey 1. ANZMES is funding their research into food security for pwME and pwLC. People with ME and LC and/or their carers are asked to contribute to their research by...
  18. hibiscuswahine

    New article in the spectator mentions ME/CFS and death threats.

    What rubbish. Poor journalism, if that is what it is. Yes, people should be listened to but I think her article is just more scaremongering. So now people are supposedly cocooned in online groups, (well if that is so why would we want to leave our lovely place of safety and go kill medical...
  19. hibiscuswahine

    Review Cognitive behavioural therapy for the treatment of chronic fatigue syndrome in adults – a meta-analysis, 2025, Kolala et al

    I disagree with their conclusion. They clearly haven't spent time properly researching CBT, just done a meta-analysis on the available studies and despite all the bias and problems they acknowledge and consider that the evidence doesn't amount to anything i.e. is "mixed" - suggests it should be...
  20. hibiscuswahine

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    More propaganda from BPS. Isn't it lovely that Garner et al are interested in our mental health, wanting to give us hope - how wonderfully evangelistic of them. Our true saviours. Their references include the psychologist Reme doing her study in Norway on LC patients. Basically a stitch up by...
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