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    Is PEM triggered by physical exertion the same as worsening triggered by sensory stimuli, cognitive exertion or emotions? What are the implications?

    It would be interesting to determine whether there is a correlation between the extent of orthistatic intolerance, disproportionate increases in heart rate on becoming upright, and symptoms of this sort in an individual, and a propensity to develop PEM from triggers like sound sensitivity and...
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    United Kingdom: 'Dr Finlay's Clinic' for Long Covid, Dr Ben Sinclair

    Apparently they have also been the subject of a series of DDoS attacks, separate to the hack.
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    What do people want me to ask Sonya Chowdhury on Friday

    They did create a media guideline in PDF format last year that they sought feedback on, but the final document was still problematic in a number of respects if memory serves. I don't know what the status of it is now, or if it was put to use...
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    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    ‘I grieve for the person I was before' - Covid inquiry to begin new phase Jim Reed, Nat Wright 9 September 2024, 01:10 BST Updated 6 hours ago https://www.bbc.com/news/articles/crrlv0enpeno
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    The UK Covid Inquiry - 2023 onward

    Copied from UK news ‘I grieve for the person I was before' - Covid inquiry to begin new phase Jim Reed, Nat Wright 9 September 2024, 01:10 BST Updated 6 hours ago https://www.bbc.com/news/articles/crrlv0enpeno
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    Great Ormond Street reviews 700 children treated by ex-surgeon (BBC) 9 Sept 2024

    Great Ormond Street reviews 700 children treated by ex-surgeon 8 September 2024 Jessica Rawnsley & Jemma Crew https://www.bbc.com/news/articles/c3035e26gl0o
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    What can we learn from the Post Office scandal publicity (including TV)?

    Tonight (Monday 9 Sept) at 9:00pm on ITV1 a one hour programme called 'Mr Bates vs the Post Office: The Impact' will be aired, in which former subpostmasters talk about the impact of the drama.
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    United Kingdom: News from #There for ME

    It runs from 6am to 9:30am weekday mornings on BBC1 and is one of the main breakfast television programmes in the UK that runs regular news, current affairs and interest pieces, the main alternative on terrestrial channels being Good Morning Britain on ITV. I would think it gets good general...
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    United Kingdom: News from #There for ME

    Merged thread Segment on ME on BBC1 Breakfast TV, 27 August 2024 There was a short ~5 minute segment starting around 9:20am on BBC1 Breakfast TV this morning talking to a couple of individuals with ME, including Karen Hargrave. Introduced with a description of the symptoms including "extreme...
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    The growing crisis of long sepsis (Daily Mail)

    The growing crisis of long sepsis. It leaves sufferers with fatigue and brain fog - so when will the NHS start treating it properly? By Lucy Elkins 11:56, 09 Jul 2024, updated 13:09, 09 Jul 2024...
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    What can we learn from the Post Office scandal publicity (including TV)?

    ITV is apparently planning a follow up documentary to Mr Bates vs The Post Office, to be presented by Will Mellor. https://www.thesun.co.uk/tv/25481866/mr-bates-vs-the-post-office-follow-up/
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    UK: Action for ME: Media Guidelines for reporting on M.E.

    I had a look and compared the published document with the draft media guideline and the feedback email I sent. A number of the items of feedback have been incorporated or partly incorporated, albeit sometimes inconsistently, but a number haven't been taken up. In places, the English also needs...
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    UK: Action for ME: Media Guidelines for reporting on M.E.

    Thanks, @Peter Trewhitt. I sent that email back in September, before AfME's deadline for feedback, which I think was the 12th September. I've edited the post above to make this clear.
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    UK: Action for ME: Media Guidelines for reporting on M.E.

    As there wasn't time to potentially organise something through S4ME, before the deadline for feedback (edit: in September 2022) I sent an email to the specified address providing feedback on the draft media guideline. To ensure AfME had sight of the feedback on this thread I also tried in my own...
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    Covid-19 vaccines and vaccinations

    Covid: Last chance for adults under 50 to get booster 4 February 2023 https://www.bbc.co.uk/news/health-64496025
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    Experience with LDN? low dose naltrexone

    I'm not sure if it's been flagged that Luis Nacul is principal investigator of a double blind, randomized, placebo controlled, LDN trial for 'post-covid 19 fatigue syndrome' (PCFS) with 160 participants. The titrations are given in the arms and interventions table. Whilst pwme are technically...
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    Persistent post–COVID-19 smell loss is associated with immune cell infiltration and altered gene expression in olfactory epithelium, 2022, Finlay JB

    Guardian coverage (by Ian Sample); https://www.theguardian.com/world/2022/dec/21/covid-loss-of-smell-nasal-cell-destruction-research
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    Persistent post–COVID-19 smell loss is associated with immune cell infiltration and altered gene expression in olfactory epithelium, 2022, Finlay JB

    Abstract: SARS-CoV-2 causes profound changes in the sense of smell, including total smell loss. Although these alterations are often transient, many patients with COVID-19 exhibit olfactory dysfunction that lasts months to years. Although animal and human autopsy studies have suggested...
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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    I agree with @CRG, it's unclear to me whether the 10 point guideline is being replaced, supplemented or is the draft handbook. I agree with @Hutan's points. A few additional ones on the content from a quick read through this evening. Why these guidelines are necessary Makes it sound that being...
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    Covid-19 vaccines and vaccinations

    A 13 minute video by Dr John Campbell on German vaccine safety data from Paul Ehrlich Institut report, Safety of COVID-19 Vaccines. Campbell acknowledges temporal link does not necessarily mean causation but also suggests not all adverse events would have been reported or recognised as such...
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