It would be interesting to determine whether there is a correlation between the extent of orthistatic intolerance, disproportionate increases in heart rate on becoming upright, and symptoms of this sort in an individual, and a propensity to develop PEM from triggers like sound sensitivity and...
They did create a media guideline in PDF format last year that they sought feedback on, but the final document was still problematic in a number of respects if memory serves. I don't know what the status of it is now, or if it was put to use...
‘I grieve for the person I was before' - Covid inquiry to begin new phase
Jim Reed, Nat Wright
9 September 2024, 01:10 BST
Updated 6 hours ago
https://www.bbc.com/news/articles/crrlv0enpeno
Copied from UK news
‘I grieve for the person I was before' - Covid inquiry to begin new phase
Jim Reed, Nat Wright
9 September 2024, 01:10 BST
Updated 6 hours ago
https://www.bbc.com/news/articles/crrlv0enpeno
Great Ormond Street reviews 700 children treated by ex-surgeon
8 September 2024
Jessica Rawnsley & Jemma Crew
https://www.bbc.com/news/articles/c3035e26gl0o
Tonight (Monday 9 Sept) at 9:00pm on ITV1 a one hour programme called 'Mr Bates vs the Post Office: The Impact' will be aired, in which former subpostmasters talk about the impact of the drama.
It runs from 6am to 9:30am weekday mornings on BBC1 and is one of the main breakfast television programmes in the UK that runs regular news, current affairs and interest pieces, the main alternative on terrestrial channels being Good Morning Britain on ITV. I would think it gets good general...
Merged thread
Segment on ME on BBC1 Breakfast TV, 27 August 2024
There was a short ~5 minute segment starting around 9:20am on BBC1 Breakfast TV this morning talking to a couple of individuals with ME, including Karen Hargrave. Introduced with a description of the symptoms including "extreme...
The growing crisis of long sepsis. It leaves sufferers with fatigue and brain fog - so when will the NHS start treating it properly?
By Lucy Elkins 11:56, 09 Jul 2024, updated 13:09, 09 Jul 2024...
ITV is apparently planning a follow up documentary to Mr Bates vs The Post Office, to be presented by Will Mellor.
https://www.thesun.co.uk/tv/25481866/mr-bates-vs-the-post-office-follow-up/
I had a look and compared the published document with the draft media guideline and the feedback email I sent. A number of the items of feedback have been incorporated or partly incorporated, albeit sometimes inconsistently, but a number haven't been taken up. In places, the English also needs...
Thanks, @Peter Trewhitt.
I sent that email back in September, before AfME's deadline for feedback, which I think was the 12th September. I've edited the post above to make this clear.
As there wasn't time to potentially organise something through S4ME, before the deadline for feedback (edit: in September 2022) I sent an email to the specified address providing feedback on the draft media guideline. To ensure AfME had sight of the feedback on this thread I also tried in my own...
I'm not sure if it's been flagged that Luis Nacul is principal investigator of a double blind, randomized, placebo controlled, LDN trial for 'post-covid 19 fatigue syndrome' (PCFS) with 160 participants. The titrations are given in the arms and interventions table. Whilst pwme are technically...
Abstract:
SARS-CoV-2 causes profound changes in the sense of smell, including total smell loss. Although these alterations are often transient, many patients with COVID-19 exhibit olfactory dysfunction that lasts months to years. Although animal and human autopsy studies have suggested...
I agree with @CRG, it's unclear to me whether the 10 point guideline is being replaced, supplemented or is the draft handbook. I agree with @Hutan's points. A few additional ones on the content from a quick read through this evening.
Why these guidelines are necessary
Makes it sound that being...
A 13 minute video by Dr John Campbell on German vaccine safety data from Paul Ehrlich Institut report, Safety of COVID-19 Vaccines.
Campbell acknowledges temporal link does not necessarily mean causation but also suggests not all adverse events would have been reported or recognised as such...
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