benefits

https://www.theguardian.com/politics/2026/mar/29/disabled-benefit-claimants-face-lower-payments-if-conditions-not-deemed-lifelong-charities-say Article by Francis Ryan about the forthcoming changes to the health element of Universal Credit. Mentions ME.

The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid. Following a review of the evidence behind...

https://www.msn.com/en-gb/money/other/pip-cuts-won-t-fix-alarming-benefit-fraud-experts-warn-labour/ar-AA1Heu3W?ocid=msedgdhp&pc=U531&cvid=6acbc446039d455191728394543dc08b&ei=135

Source: Dutch Steungroep Several patients with MEcfs who were denied disability benefits or disability benefits were halted, took legal action. Translation (it does not translate, seems a protected article, so this is a manual version) 28th of May 2025 An exiting day at the Central Council of...

My letter in the Sunday Times: https://www.thetimes.com/article/7ca70835-10d8-4c7c-afc7-37a262ae4b30?shareToken=09b55d03e27e4597cf9cff05d050de27 Published version: Motability scheme As someone who has suffered from severe ME/CFS for more than 30 years, I can relate to Sir Ed Davey’s feelings...

PIP helper: New tool launched for DWP claimants of millions in personal independence payment going unpaid | The Independent

benefitsandwork.co.uk has just published a new guide for those claiming PIP for ME/CFS. The full guide is only available to paid members, but the page below gives a flavour of what is in the guide. The linked page also includes some interesting stats on PIP claims by those with a primary...

This thread has been split from the 2023 thread For the green paper and PIP consultation go to #post 44 Not sure if there is anything new in this news item but it may clarify some points...

Disability News Service DWP set to waste thousands fighting release of two secret reports The Department for Work and Pensions (DWP) is set to waste thousands of pounds of public money fighting two rulings by the information commissioner that it must release secret reports affecting millions...

6% of Workers' Comp Cases Are for Long COVID, But Many Can't Collect https://www.medscape.com/viewarticle/997416 (no paywall but may require free registration)

Fit For Work – Three Part Series on BBC Radio 4 by Jolyon Jenkins "For 30 years, governments have tried to get disabled people into work by toughening up benefit rules. Part of the motivation has been to cut the welfare bill, but it’s also been framed as an attempt to stop disabled people...

Ordeals and the Empathy Gap Sam Freedman 'Comment is Freed' substack Long read, UK focused but wider relevance: Exerpt An under-discussed aspect of covid policy was the speed with which government supported people financially and temporarily solved social problems. Furlough is widely seen as...

Split from the 2021-2 thread From today’s Politico newsletter: Shadow Work and Pensions Secretary Jonathan Ashworth will deliver a speech to the Center for Social Justice think tank this morning, pledging reforms to out-of-work support. The Labour plans involve allowing people on sickness...

https://www.lancs.live/news/cost-of-living/50-pip-conditions-could-see-25873700

UK - Rise in energy firms remotely switching homes to prepay meters something to be aware of if you are thinking about getting a smart meter https://www.bbc.co.uk/news/business-63554879

End assessments and consider disability benefit claims on medical advice alone - Petitions (parliament.uk)

"The ME Local Network (MELN) has been created and is being steered by local ME support groups across the UK, [...]. The aims of this network include strengthening mutual help between local support groups, sharing information and best practice, ensuring the grassroots voice is heard and feeding...

https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.729.2487&rep=rep1&type=pdf Too big to upload the PDF

From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences of both the Work Capability Assessment (WCA) AND Personal Independence Payments (PIP) assessments. We want your ideas for how to make the ‘claim...

Just wondering whether the new NICE ME/CFS guidelines can be beneficial at all in relation to all the various UK benefit applications? Haven't really thought this through yet.