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  1. Sly Saint

    Article on woman with EDS : I’m facing paralysis at 29 but the NHS won’t operate

    https://www.msn.com/en-gb/health/other/i-m-facing-paralysis-at-29-but-the-nhs-won-t-operate/ar-AA1JEqAc?ocid=msedgntp&pc=U531&cvid=1f03e2792d03410c84a2c89f9b748f52&ei=10
  2. John Mac

    Preprint Hypothesis: A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID, 2025, Jeff Wood, Kaufman et al.

    Abstract The underlying pathologies driving post-acute infectious syndromes (e.g. myalgic encephalomyelitis / chronic fatigue syndrome, long COVID, etc) remain poorly understood. Given the extreme burden these illnesses impose on suffers, and the dramatic increase in cases following the COVID-19...
    • John Mac
    • Thread
    • brainstem cci immune system jeff wood kaufman long covid me/cfs peripheral nervous system remission biome
    • Replies: 78
    • Forum: ME/CFS research
  3. Andy

    Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome.., 2021, Spiessberger et al

    Full title: Ehlers–Danlos syndrome-associated craniocervical instability with cervicomedullary syndrome: Comparing outcome of craniocervical fusion with occipital bone versus occipital condyle fixation Abstract Introduction: Ehlers–Danlos syndrome (EDS) predisposes to craniocervical...
  4. Dolphin

    Can Chronic fatigue syndrome and Myalgic encephalomyelitis be caused by cervical stenosis and cervical spine instability?, 2020, Hauser

    Not a peer-reviewed paper, but does include scientific references. I will leave it to others more interested in this area.
  5. Sly Saint

    ME/CFS Research Update: November 2019 Bedside Chat with Ben H. and Ron Davis

    thanks to @Ben H eta: youtube generated transcript pt 1
    • Sly Saint
    • Thread
    • 2019 cci clonal expansion me/cfs omf red blood cell deformability research ron davis t cells trypanosome video
    • Replies: 2
    • Forum: ME/CFS research
  6. Anna H

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Bragée Clinic in Sweden is planning a study looking at 'Craniocervical dysfunction, neuroinflammation and infection in ME/CFS ws healthy controls' Jonas Bergquist from OMF's research center in Uppsala, among others. ETA: The study will include 80 patients from the Bragée clinic with an...
  7. MSEsperanza

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    Moderator note: This post was copied, and subsequent posts discussing it, have been moved from this thread: Biomedical articles on MEpedia - purposes and pitfalls Discussion of MEPedia policy on its science articles and what should be included continues on that thread. Anyone feeling up to...
  8. ME/CFS Science Blog

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Concerns about craniocervical instability surgery in ME/CFS CCI/AAI has little in common with ME/CFS Three ME/CFS patients, Jeff, Jennifer, and Matt, have reported improvements of their ME/CFS symptoms following surgical interventions for craniocervical instability (CCI) and atlantoaxial...
  9. Dr Carrot

    Jen Brea: My ME is in remission

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