cdes

https://www.openaccessgovernment.org/article/common-data-elements-to-advance-me-cfs-research/189538/ Common data elements to advance ME/CFS research First Published: 11th March 2025 Last Modified: 11th March 2025 Standardizing data collection in ME/CFS research through Common Data Elements...

Source: Neurology Vol 90, #15 Supplement Date: April 23, 2018 URL: http://n.neurology.org/content/90/15_Supplement/P2.016 [American Academy of Neurology 70th Annual Meeting, Los Angeles] A Common Language for Clinical Research Studies: The National Institute of Neurological Disorders and...

"Version 1.0 of the NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements is now available: https://www.commondataelements.ninds.nih.gov/MECFS.aspx#tab=Data_Standards Regards, The Trans-NIH ME/CFS Working Group " did not read

I just submitted the following comments. Thanks to @Sasha and @Graham for giving me feedback on an earlier draft. I am aware of another draft submission that is being made on this instrument (I was too late to the discussion to give my comments) so decided to restrict myself to a few comments...

Apparently the NIH ME/CFS Working Group have developed Common Data Elements (CDEs) for ME/CFS and they'll be made public tomorrow. The public can comment until 31 January 2018. No link as yet. Here's some info about CDEs: https://clinfowiki.org/wiki/index.php/Common_Data_Element_(CDE)