ehlers-danlos syndrome

  1. forestglip

    Review Ignored, Dismissed, and Minimized: Understanding the Harmful Consequences of Invalidation in Health Care [...], 2025, Bontempo et al

    Ignored, Dismissed, and Minimized: Understanding the Harmful Consequences of Invalidation in Health Care—A Systematic Meta-Synthesis of Qualitative Research Allyson C. Bontempo, John M. Bontempo, Paul R. Duberstein [Line breaks added] Abstract The upsurge in the prevalence of contested...
    • forestglip
    • Thread
    • ehlers-danlos syndrome endometriosis fibromyalgia gulf war illness invalidation irritable bowel syndrome long covid lupus me/cfs multiple chemical sensitivity pots vulvodynia
    • Replies: 21
    • Forum: ME/CFS research
  2. forestglip

    Similar Ehlers–Danlos Syndrome Profiles Produced by Variants in Multiple Collagen Genes, 2025, Tonk et al

    Similar Ehlers–Danlos Syndrome Profiles Produced by Variants in Multiple Collagen Genes Sahil S Tonk, Golder N Wilson Background Despite increased attention to double-jointedness or joint hypermobility as seen in connective tissue dysplasias like Ehlers–Danlos syndrome, improved clinical DNA...
  3. ME/CFS Skeptic

    hEDS and hypermobility spectrum disorder - ME/CFS Skeptic

    A new blog post on the problems with hEDS and hypermobility spectrum disorder. https://mecfsskeptic.com/heds-and-hypermobility-spectrum-disorder/ Epidemiological studies show no clear relationship between hypermobility and widespread pain. This questions the validity of diagnoses such as...
  4. Hoopoe

    Heterozygous THBS2 pathogenic variant causes Ehlers–Danlos syndrome with prominent vascular features in humans and mice 2024 Hadar et al

    A new type of Ehlers-Danlos syndrome with vascular features has been discovered. https://www.nature.com/articles/s41431-024-01559-1
  5. SNT Gatchaman

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome, 2018, Artoni et al.

    Hemostatic abnormalities in patients with Ehlers–Danlos syndrome A. Artoni; A. Bassotti; M. Abbattista; B. Marinelli; A. Lecchi; F. Gianniello; M. Clerici; P. Bucciarelli; S. La Marca; F. Peyvandi; I. Martinelli Background: Ehlers–Danlos syndrome (EDS) includes a heterogeneous group of...
  6. SNT Gatchaman

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome, 2023, Kumskova et al.

    Characterization of bleeding symptoms in Ehlers–Danlos syndrome Mariia Kumskova; Gagan D. Flora; Janice Staber; Steven R. Lentz; Anil K. Chauhan Background Easy bruising is included as a major or minor criterion for the classification of multiple types of Ehlers–Danlos syndrome (EDS). Despite a...
  7. SNT Gatchaman

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO, 2021, Hakim et al.

    Ehlers–Danlos syndromes, hypermobility spectrum disorders, and associated co-morbidities: Reports from EDS ECHO Alan J. Hakim; Brad T. Tinkle; Clair A. Francomano Volume 187, Issue 4 Special Issue: Ehlers‐Danlos syndromes, Hypermobility Spectrum Disorders, and Associated Co‐Morbidities: Reports...
  8. RedFox

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes https://www.sciencedirect.com/science/article/pii/S2667321523000215 Abstract: Patients with hypermobile Ehlers Danlos Syndrome often experience...
  9. cassava7

    The [ME/CFS] Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing..., 2021, van Campen et al

    The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Joint Hypermobility Show Larger Cerebral Blood Flow Reductions during Orthostatic Stress Testing Than Patients without Hypermobility: A Case Control Study Linda M.C. van Campen Stichting CardioZorg, Planetenweg 5, 2132 HN...
    • cassava7
    • Thread
    • 2021 cerebral blood flow eds ehlers-danlos syndrome hypermobility me/cfs orthostatic intolerance paper pots tilt table test van campen
    • Replies: 1
    • Forum: ME/CFS research
  10. cassava7

    CFS is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome, 2011, Castori et al.

    Castori M, Celletti C, Camerota F, Grammatico P. Chronic fatigue syndrome is commonly diagnosed in patients with Ehlers-Danlos syndrome hypermobility type/joint hypermobility syndrome. Clin Exp Rheumatol. 2011;29(3):597-598. https://www.clinexprheumatol.org/article.asp?a=4635 No abstract, this...
  11. Hoopoe

    Piezogenic papules in Ehlers-Danlos and ME/CFS?

    I saw this on twitter today. To my surprise I have of few these papules on each side.
  12. MSEsperanza

    Mast cell activation syndrome: Importance of consensus criteria and call for research (J Allerg Clin Immunol), Valent et al 2018

    Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical Immunology, Volume 142, Issue 3, 1008 - 101, https://www.jacionline.org/article/S0091-6749(18)30854-6/fulltext (letter to the editor) I found this...
  13. Andy

    Video: Peter Rowe - Orthostatic Intolerance in EDS/HSD

  14. Andy

    Theory article: Chronic Fatigue Syndrome: From Chronic Fatigue to More Specific Syndromes, 2018, Blitshteyn & Chopra

    Paywalled at https://www.karger.com/Article/Abstract/493531#tab4
    • Andy
    • Thread
    • 2018 blitshetyn connective tissue criteria diagnosis ehlers-danlos syndrome fibromyalgia mast cell activation syndrome me/cfs paper pots small fiber neuropathy
    • Replies: 5
    • Forum: ME/CFS research
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