epistemic injustice

‘We Don't Have to Prove to People How We're Feeling’: Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre Nandini Sarma, Sam Gage, Catherine L. Hough, Aluko A. Hope Background Long COVID, an infection-associated chronic condition...

Abstract: Endometriosis, a chronic inflammatory condition affecting 10% of biological women, is widely understudied and particularly overlooked in later life. Discussions surrounding endometriosis predominantly centre on medical gender bias during reproductive years, with limited attention to...

I feel like the discourse, the research, and pretty much everything and anything around Long COVID and ME focuses on the “symptoms” and not the functional disability. I am not disabled by symptoms alone; I am disabled by a profound functional limitation driven by post-exertional malaise (PEM)...

Abstract: A group of debilitating health conditions disproportionately impacting women, increasingly known as ‘energy limiting conditions’, is associated with a long history of medical and societal disability denial. This article offers reflections on socio-cultural, bio-political and...

Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research. Abstract: “People with disabilities are subject to multiple forms of health-related and wider social disparities; carefully focused research is required...

The Untapped Power of “We Don't Know”: Epistemological Humility in the Era of COVID-19 Jolaade Kalinowski; Elizabeth A. Hintz; Chigozirim Izeogu The SARS-CoV-2 (COVID-19) pandemic introduced many challenges and nuances that have transformed medical practice and research. The uncertainty caused...

https://peh-med.biomedcentral.com/articles/10.1186/s13010-021-00110-0 Abstract Epistemic injustice sits at the intersection of ethics, epistemology, and social justice. Generally, this philosophical term describes when a person is wrongfully discredited as a knower; and within the clinical...

Abstract In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from ‘epistemic injustices’ – that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013–2018 Dutch Myalgic...

Spanish title: Síndrome de fatiga crónica: experiencias de las personas afectadas, práctica clínica y justicia epistémica Looks like it might be a letter to the editor of a Spanish publication. No abstract available. Paywall, https://www.sciencedirect.com/science/article/abs/pii/S1130862121000371

Looks like it might be interesting and sympathetic http://ejpch.org/ejpch/article/view/1861 Edited to add: Prepublication version: https://garrathwilliams.weebly.com/uploads/1/2/0/7/120771106/wiliams_explaining_epistemic_injustice_in_medicine.pdf EXPLAINING EPISTEMIC INJUSTICE IN MEDICINE...

I think it is possible it happens with some people with ME/CFS, both men and women https://www.sciencedirect.com/science/article/pii/S2352552520300839#! Ethics, Medicine and Public Health Volume 15, October–December 2020, 100545 Thoughts Connecting epistemic injustice and justified belief in...

https://link.springer.com/article/10.1007%2Fs11019-020-09945-4

Paywalled at https://link.springer.com/article/10.1007/s11673-018-9866-5

'Wessely has consistently promoted the unsubstantiated suggestion that ME is caused or maintained by patients’ false illness beliefs and abnormal behaviour. As a result, the integrity of patients’ experience of this devastating illness been destroyed as their testimony is deemed unreliable...