hsd

  1. Chandelier

    Preprint Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders, 2026, Bloom et al.

    Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders Abstract A subgroup of patients with hypermobile Ehlers–Danlos syndrome (hEDS), hypermobility spectrum disorders (HSD), and related heritable connective tissue disorders develop...
  2. Chandelier

    Managing Patients With Hypermobility Disorders: They’ve Seen You, but Have You Seen Them?, 2026, Mintken et al.

    Managing Patients With Hypermobility Disorders: They’ve Seen You, but Have You Seen Them? Mintken, Paul E.; Dommerholt, Jan; Francomano, Clair A. Abstract SYNOPSIS: Patients with hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS) frequently present to...
  3. SugarSquared

    Collagen Advocacy Network - EDS Advocacy Group

    Has anyone heard of the Collagen Advocacy Network? It seems to be a new group (first post on Instagram was on March 12) that focuses on the stories and needs of people with genetic EDS types. Their Instagram bio is “Advocacy & community for people with rare and ultra rare Ehlers Danlos...
  4. Ryan31337

    Functional and structural impairment of small nerve fibers in patients suffering from hEDS/HSD, 2022, Fernandez et al

    Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder Aurore Fernandez, Berengere Aubry Rozier, Mathieu Vautey, Chantal Berna, Rene Suter doi.org/10.1101/2022.02.17.22271061...
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