hsd

Gastrointestinal Symptom‐Specific Anxiety Predicts Positive SCOFF Screens in Adults With Hypermobile Ehlers‐Danlos Syndrome and Hypermobility Spectrum Disorder and May Overestimate Eating Disorder Risk ABSTRACT Background/Aims The Sick, Control, One, Fat, Food (SCOFF) is a questionnaire that...

Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders Abstract A subgroup of patients with hypermobile Ehlers–Danlos syndrome (hEDS), hypermobility spectrum disorders (HSD), and related heritable connective tissue disorders develop...

Managing Patients With Hypermobility Disorders: They’ve Seen You, but Have You Seen Them? Mintken, Paul E.; Dommerholt, Jan; Francomano, Clair A. Abstract SYNOPSIS: Patients with hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS) frequently present to...

Has anyone heard of the Collagen Advocacy Network? It seems to be a new group (first post on Instagram was on March 12) that focuses on the stories and needs of people with genetic EDS types. Their Instagram bio is “Advocacy & community for people with rare and ultra rare Ehlers Danlos...

Functional and structural impairment of small nerve fibers in patients suffering from hypermobile Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder Aurore Fernandez, Berengere Aubry Rozier, Mathieu Vautey, Chantal Berna, Rene Suter doi.org/10.1101/2022.02.17.22271061...