From Literary Hub:
Two Households, Both Alike in Indignity: An Interview with Anne Ursu
Anne Ursu is the author of Not Quite a Ghost, a middle grade novel about "an eleven-year-old, Violet, who comes down with a post-viral illness"
It's hard to pick a section to quote, but here's one that...
This was sent to an organisation that I help run today.
I thought I would share it as perhaps one or more people would like to listen to it and share their thoughts.
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Hello My name is Maja Strasser, I am a neurologist in Switzerland. I have written a treatment protocol based on the treatment...
Abstract
BACKGROUND For many patients with post–COVID-19 condition (long COVID), primary care is the first point of interaction with the health care system. In principle, primary care is well situated to manage long COVID. Beyond expressions of disempowerment, however, the patient’s perspective...
BBC Hard Talk interview:
Stephen Sackur speaks to palliative care doctor and writer Rachel Clarke. Her books about the reality of doctoring, confronting Covid and, most of all, about dealing with death are unvarnished, moving and thought-provoking. She asks us to consider a tough question - can...
CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go unrecognized in tests and is often viewed with skepticism by the medical establishment. This includes post-treatment Lyme disease syndrome, which you were...
"Interview with Dr. Lucinda Bateman, founder and medical director of the Bateman Horne Center in Salt Lake City, Utah. She is recognized worldwide as an expert in the diagnosis and treatment of ME/CFS. In this episode, Llewellyn King talks with Dr. Bateman about how she became involved in the...
David had read some of Leonard's publications including the study regarding problems with CBT when used with patients with ME/CFS. David also appreciated the research Leonard had done over the years examining case definitions. David believed that the work Leonard has done should be a foundation...
Don't think this has been posted here yet?
Hanne Thürmer is a Norwegian cardiologist and one of the researchers of the RituxME-trial. Haven't seen the talk yet, but she's very knowledgeable about ME and sympathetic, so this should be good!
Graeme Jones and Annie Pettersson at Nordic Clinic Stockholm has interviewed Jonas about ME/CFS and his unique research. You can view or listen to the full interview below.
https://nordicclinic.se/interview-with-me-researcher-jonas-bergquist/
also on youtube
eta: in english
Duration 25 minutes
Description:
Llewellyn King interviews Leonard A. Jason, professor of psychology and director of the Center for Community Research at DePaul University in Chicago. Thirty years ago, Jason was stricken with ME/CFS, after a bout of mononucleosis. When he began researching the...
I figured this book deserved its own thread even though it's a few years old.
It's a wonderful memoir by Elisabeth Tova Bailey from when she was bedridden with ME and starts researching snails when a friend brings here one from outdoors.
From the presentation of the book on its website
While...
CODEs study group
ProfLaura HGoldsteinPhDaEmily JRobinsonMScbgJohn D CMellersMRCPsychhProfJonStonePhDiProfAlanCarsonMDiProfMarkusReuberPhDjNickMedfordPhDhProfPaulMcCronePhDcJoannaMurrayBAdProfMark...
This post has been copied and some following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid
"Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion
May 5, 2020
Paul Garner, professor of...
#MEAction has posted an interview with Dr. Lucinda Batemen of the Bateman Horne Centre of Excellence (BHC) for ME/CFS and Fibromyalgia.
https://www.meaction.net/2020/02/18/meet-the-scientist-interview-with-dr-lucinda-bateman/
Interview starts at 2 hours 5 minutes:
https://www.abc.net.au/radio/programs/rhiannapatrick/rhianna-patrick/11831752
Tweet from Mark Guthridge for those on twitter
https://twitter.com/Dr_M_Guthridge/status/1214570526687006721
BBC interview with a Lyme victim who has a story that too many of us recognize.
It also triggered ME/CFS in her case.
The good news is that there is, or will be, an app where people can find out if infected ticks have been found in certain places or areas.
I´d be very interested in this app...
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