patient scientist

https://youtu.be/_QqjvWrflmw

Hi all, Just flagging the "MECFS Patient Researcher Accolade Portfolio" @mecfspatientresearchers on Facebook at https://www.facebook.com/mecfspatientresearchers/ You will recognise a number of research heroes. There are other profiles in the works, once gotten round to (energy permitting)...

Paving the way – the second generation of e-patients, their experiences, actions and driving forces THESIS FOR LICENTIATE DEGREE (Ph.Lic.) By Therese Scott Duncan Free full text: https://openarchive.ki.se/xmlui/bitstream/handle/10616/47063/Thesis_Therese_Scott_Duncan.pdf?sequence=3&isAllowed=y

A thread for people who want to ask questions about how the immune system works. My question is this: we hear people saying things like "I have a strong immune system, I don't get ill often", or "my husband and I both got the virus but my symptoms are worse because my immune system is weaker...

full details here https://www.evidentlycochrane.net/peoples-trial-fun-online-trial/ see also: https://thepeoplestrial.ie/about-us/ any way we can use this?

Doug Lindsay was bedridden for 11 years with a mysterious illness nobody could figure out, so the college dropout figured it out for himself. This is an amazing story

This is an opportunity for members of the public to attend a free workshop: 'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...

https://blogs.bmj.com/bmj/2014/10/17/amy-price-patients-doing-research-for-themselves/

https://blogs.bmj.com/bmj/2016/09/14/amy-price-the-evidence-informed-patient/

https://www.sciencemag.org/careers/2016/03/how-seriously-read-scientific-paper

There are a number of tools available for journals to use to help assess RCTs. I wondered if anyone here had 'tried them out' for PACE and/or any of the other 'RCT's by Crawley or Chalder? I've seen CASP mentioned...

Yoga, Depression, & Clinical Trial Critique 101 Posted August 12, 2018 by Hilda Bastian in Evidence, Health http://blogs.plos.org/absolutely-maybe/2018/08/12/yoga-depression-clinical-trial-critique-101/ Not specifically about ME, but I thought it might be of interest to some people who are...

https://www.huffingtonpost.com/jennifer-raff/how-to-read-and-understand-a-scientific-paper_b_5501628.html