Edit: Countries that are included in this thread in alphabetical order:
Albania, Bosnia and Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Moldova, Montenegro, North Macedonia, Romania, Serbia, Slovenia
I used the broadest definition of SEE here but there are overlaps with other...
Moved from the Long covid in the media thread.
This one by the Finnish government's expert group on long covid was published in January 2022, but I don't think it has been posted on here yet?
Expertgrupp: Långvariga symptom efter covid-19 kan förekomma hos ungefär varannan vuxen – vaccinerna...
Moved post
Fibromyalgia and CFS in the Brazilian Parliament
From: Dr. Marc-Alexander Fluks
Subject: ME/FM in Brazilian parliament
Source: Play Crazy Game (Brazil)
Date: March 28, 2022
URL...
we don't seem to have a thread for Ireland
Irish ME patients hope HSE will follow UK and scrap exercise therapy guidance
https://www.thejournal.ie/me-exercise-5590653-Nov2021/
@Tom Kindlon
@Brian Hughes
Spain produces quite a lot of ME/CFS research and we have some Spanish members, so I thought it might be useful to have a regional thread for Spain.
There's new research out from the Barcelona team with Jesús Castro-Marrero, using trial participants from the ME/CFS Unit, Vall d'Hebron...
The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid.
Following a review of the evidence behind...
This thread is for news about ME/CFS and related topics from Canada
Post copied from this thread:
ME/CFS: Organic Disease or Psychosomatic Illness? A Re-Examination of the Royal Free Epidemic of 1955, Underhill & Baillod, 2020
which discusses the study noted below...
ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder
Imagine going for a short walk one day and then the next morning you can't even get out of bed.
That's what life is like for some people living with what's...
I thought it might be useful to have a thread on ME/CFS news for the Netherlands, similar to the threads we have on Scandinavian countries. If there's some really important news we could make a separate thread for it and link to it in this general thread that keeps an overview of all ME/CFS...
The following has come to my attention (thanks @Philipp):
http://dip21.bundestag.de/dip21/btd/19/126/1912632.pdf
It is a reply to a list of questions which a few German MPs put to the government:
The answers basically say that it's not the Government's concern, it's up to the scientists. The...
So there's some news from Belgium.
The government has extended its ME/CFS-convention until 2020. In parliament our Minister of Health said the assessment report of GET/CBT rehabilitation has shown to be highly successful. Patients however were not allowed to see the report...
The new...
The News from Scandinavia is such an interesting and useful thread, so I thought it could be worth seeing if we could sustain a similar one for New Zealand. We do have some good research being done, some active advocates and even a suggestion from David Tuller that he might get here in the next...
Hi
I'm keen to talk to ME patients in Malta as part of my challenge to raise awareness across Europe.
If anyone would like to answer a few short questions or tell me their story that would be brilliant.
I'll be there on Feb 25th to run the marathon and am working with the ME/CFS/Fibro...
Thought it might be useful to have a thread on news from Scandinavia. Hopefully it can become an archive and useful as a reference in future.
Starting with the kickoff of one of the four research projects which recently got funded in cooperation with ME-patients by the Research Council of...
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