1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

News from India

Discussion in 'Regional news' started by Hutan, Jun 16, 2022.

Tags:
  1. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,889
    Location:
    Aotearoa New Zealand
    A thread for news about ME/CFS and associated illnesses in India.
     
    Hutan, Jun 16, 2022
    #1
    mango, Wonko, oldtimer and 8 others like this.
  2. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,889
    Location:
    Aotearoa New Zealand
    Hutan, Jun 16, 2022
    #2
    Wonko, oldtimer, cfsandmore and 7 others like this.
  3. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,092
    Chronic fatigue syndrome (CFS)—An invisible long-term illness that affects women more than men
    According to experts, due to a lack of awareness and insufficient research, the diagnosis of CFS in India is quite difficult. Several researchers pointed out that medical school textbooks around the globe have little or no descriptions of this condition.
    Written by Sushmita Panda
    Updated: June 20, 2022 3:40:39 pm
    https://www.financialexpress.com/he...ess-that-affects-women-more-than-men/2566712/
     
    Dolphin, Jun 21, 2022
    #3
    Wonko, Hutan, shak8 and 7 others like this.
  4. Jaybee00

    Jaybee00 Senior Member (Voting Rights)

    Messages:
    1,890
    Jaybee00, Aug 14, 2022
    #4
    Hutan, oldtimer and Peter Trewhitt like this.
  5. Samuel

    Samuel Senior Member (Voting Rights)

    Messages:
    628
    The Supreme Court directs the Ministry of Health and Family Welfare to consider people with ME/CFS Dec 2022

    from: Dr. Marc-Alexander Fluks

    Source: Medical Dialogues
    Date: December 6, 2022
    Author: Barsha Misra
    URL:
    https://medicaldialogues.in/news/he...nic-fatigue-syndrome-sc-directs-centre-103586


    Examine ways to improve conditions of people suffering from Chronic
    Fatigue Syndrome: SC Directs Centre
    -------------------------------------------------------------------

    New Delhi: The Supreme Court recently directed the Union Ministry of
    Health and Family Welfare for examining the means for betterment of the
    conditions of people suffering from Chronic Fatigue Syndrome or Myalgic
    Encephalomyelitis.
     
    Last edited by a moderator: Dec 7, 2022
    Samuel, Dec 7, 2022
    #5
    Kalliope, cfsandmore, Trish and 7 others like this.
  6. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,889
    Location:
    Aotearoa New Zealand
    Screen Shot 2022-12-07 at 6.34.53 pm.png

    Screen Shot 2022-12-07 at 6.36.46 pm.png

    Here's the link to the Supreme Court ruling:
    https://medicaldialogues.in/pdf_upload/supreme-court-chronic-fatigue-syndrome-192999.pdf
    I think the article is a bit more positive than the actual Supreme Court ruling. I think the judges ruled that the delay in providing the good care that might have been expected as a result of the 2017 National Policy for Treatment of Rare Diseases is ok. But that if the petitioner was to submit a request to the Ministry of Health and Family Welfare, the court has provided support for a review of the matter by experts.

    Of course, the key thing is 'which experts?'.

    I think the petitioner is P. Sreenivasa Chakravarthy - good on them.
    There is also a list of people 'for the petitioner' who I assume are advisors for the petitioner:
    Mr. S.P. Singh, Sr. Adv.
    Mr. Rakesh Khanna, Sr. Adv.
    Mr. Gopal Verma, AOR
    Mr. Umang Verma, Adv
    Mr. Ganganmeet Singh Sachdeva, Adv.
    Ms. Ramya Khanna, Adv.

    It would be terrific if the petitioner could be alerted to forum, so that they could get some international support for taking on the Ministry of Health and Family Welfare.
     
    Hutan, Dec 7, 2022
    #6
    bobbler, Andy, Sean and 6 others like this.
  7. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,889
    Location:
    Aotearoa New Zealand
    Hutan, Jun 26, 2023
    #7
    Peter Trewhitt and Trish like this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,889
    Location:
    Aotearoa New Zealand
    Hutan, Aug 4, 2023
    #8
    shak8, NelliePledge, Trish and 1 other person like this.

Share This Page