systemic neglect

  1. Chandelier

    Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis, 2026, Chloé de Canson

    Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis de Canson, Chloé Abstract It is usually assumed that patient and doctor know strictly different things: the patient knows the phenomenological aspects of their illness, and the doctor knows its...
  2. Chandelier

    [GER] How Lived Illness Experience Is (Not) Recognized: On the Structure of Medical Violence in ME/CFS and Long COVID, 2026, Nicolas, Schomerus et al.

    Wie Betroffenheit (nicht) anerkannt wird: Zur Struktur medizinischer Gewalt bei ME/CFS und Long COVID Machine Translation: 5. Conclusion Last but not least, engaging with ME/CFS and Long COVID also raises a professional-policy concern for social work: The consequences of COVID-19 have been...
    • Chandelier
    • Thread
    • epistemic injustice germany lived experience mecfs schomerus systemic neglect
    • Replies: 8
    • Forum: ME/CFS research
  3. Wyva

    Investigating the ME/CFS experience through qualitative analysis of memorial entries, 2026, Sirotiak, Amro

    Zoe Sirotiak, Hailey J. Amro Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an impairing chronic condition characterized by exhaustion and worsening symptoms following exertion, often accompanied by pain, sleep issues, and cognitive issues. Historically, ME/CFS was not...
    • Wyva
    • Thread
    • cfids memorial qualitative research quality of life systemic neglect
    • Replies: 9
    • Forum: ME/CFS research
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