very severe me

The most commonly quoted prevalence figure for severe ME/CFS is 25%. This includes very severe ME/CFS which is estimated to be a much smaller proportion. We have quite a few members here with very severe ME/CFS, by which I mean bedridden or almost entirely bedridden, (edit: plus a range of...

Severe and very severe ME/CFS A thread to collect links to useful resources and the threads about them. Please go to the linked thread if you want to discuss a particular resource. Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021...

"The purpose of this paper is to provide guiding principles to support patients with severe or very severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) accessing emergency medical care or a planned admission to an acute Royal Devon University Healthcare NHS Foundation Trust (RDUH)...

Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan Edwards Abstract: In the United Kingdom, a small but steady stream of people diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)...

Hi, I usually can only use my phone for a couple minutes every week or so but sleep deprivation and an unknown allergic reaction gave me lots of adrenaline. I am using this to request help to compile a couple resources that will help my parents care for me. Obviously I am super thankful to...

Moderator note posts below have been moved from: https://www.s4me.info/threads/news-from-scandinavia.647/ "Help Holger now!" 13 minutes long video in Swedish about Holger who is very severely ill with ME. Made by his younger brother. (I haven't been able to watch the whole video yet, but...

Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected" Guest Editors: Dr. Kenneth Friedman Laboratory Corporation of America Holdings, Burlington, United States Dr. Lucinda Bateman Bateman Horne Center, Salt Lake City, United States Prof...

ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst https://www.meassociation.org.uk/2019/08/very-severe-me-its-time-for-something-new-by-greg-crowhurst-16-august-2019/ This is the first of a series of blogs looking at pertinent issues regarding Very Severe ME and...

A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of mistreatment, including two visits to psychiatric facilities. Right now she is in an awful situation, so sick she can’t tolerate people in the same room and...