‘Chronically Ill – Chronically Ignored’ (Chronisch Krank – Chronisch Ignoriert in German): a new documentary on ME/CFS

https://www.thecanary.co/global/world-analysis/2025/02/17/chronically-ill-chronically-ignored/

 

Article in German


Arte documentary about the disease ME/CFS: A film that is supposed to make its audience cry
Two filmmakers have made a shocking documentary about life and death with ME/CFS. One of them suffers severely from the disease herself and was only able to work on the project from her Berlin apartment. arte will show the film at the end of February.

https://www.riffreporter.de/de/gese...ion-mecfs-chronisch-krank-chronisch-ignoriert

 

Now on YouTube need a VPN to view though.

https://twitter.com/user/status/1894089566241325331

 

I thought the stories of the patients were really well portraited and from a patient perspective. The science bits were in my opinion often questionable. I thought that was really a pity. I therefore have mixed feelings about recommending it. If it were just to have a friend see what ME entails, then yes. If it were for advocacy in a more medical or scientific setting, then no.

 

Energy permitting, could you elaborate? I’m wondering if this might be worth sending to my grandma who doesn’t really seem to understand my severity. I unfortunately am too severe to watch myself.

(It’s on ARTE which means it’s dubbed in French and my grandma only speaks French).

 

I thought some of the (preliminary) findings/science were presented too much as facts. Or it was simply not clearly stated that they are preliminary. There was however nothing pro BPS or anything that would give in that way a problematic impression of ME. I don't think your grandmother will be bothered by what I felt was questionable. From a patient perspective it's a good documentary.

 

So like overstating brain inflammation or T cell abnormalities or stuff like that?