2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

Quixote wasn't really frightened of anything but decided that he needed to win over something. So, as Sasha says, he chose windmills.

 

So you’re implying that Cochrane aren’t afraid of anyone?

 

I think this would be worth doing. A parliamentary question gets it on the official record, and politicians and the public would see that Cochrane hasn't acted professionally, fairly or within its remit, without necessarily having to have knowledge of the specifics. Might also be worth asking your MP to contact the Chair of the Health and Social Care Select Committee. That's Layla Moran, who seems pretty decent.

Government funding or not wouldn't affect an issue being within the remit of a Select Comittee.

 

But aren't Cochrane still collaborating with NICE?
From 2021
Interview: Cochrane and NICE collaborate to improve health guidelines | Cochrane

ironically isn't Gill Leng now a Cochrane trustee?
Cochrane Governing Board announces new trustees - Embedding evidence and governance expertise into Cochrane’s Governing Board | Cochrane

Does this collaboration only work one way?
IE shouldn't the NICE review evidence now supercede the Cochrane 2019 review?

If NICE are using Cochrane reviews then surely Cochrane have a duty to make sure they are up to date.

@Robert 1973 maybe a well worded question on this point (if it's still valid) might be useful(?)

 

Well done.
Is she a member of the APPG?

 

Thanks. She has met Sonya and asked to join, but I’m not sure if she is officially a member yet.

 

Sorry- I've missed some of the thread but do we have a date for the next APPG? i wrote to my MP before the last one and was told by his team he waS interested but I couldn't find his name on the list of attendees.

 

Looks like today was complaint response day. I got a response today too for my complaint about the date update:

 

Does this response actually address our specific complaints?

 

I doubt it. "We write the rules and we decide whether we've upheld them. And we've decided we have."

Some of the medieval witch trials had more regard for evidence and balance.

 

I guess there’s always the appeal process?

Escalation to appeals: In cases where those who complained were dissatisfied with the response, these will be handled by an appeals board consisting of key Cochrane leadership figures, including the Editor in Chief, Chief Executive Officer, and up-to two members of the Governing Board. This collective approach will provide a supportive environment for decision-making and ensure a final decision can be made

 

There is, but it's a lot of effort when they've already made their position—and their likely refusal to deviate from it no matter what—quite clear.

 

The benefit would be more publicity and conflict - which might make them want to concede something. It has become pretty clear that they put their own comfort over their integrity. So I say: let’s keep the flame burning if someone are able and willing to do the work.

 

I agree we should progress the complaint as we need to move beyond just Cochrane and raise the issues with Cope and the Charities Commission.