2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

Just for added fun, here's the latest correspondence I had with Wiley who said they were going to investigate my allegation of misconduct against the Editor in Chief. Not sure whether I will receive a response to my latest clarification. I have now explained about 17 times that Cochrane did not investigate the misconduct allegation because the Cochrane co-chairs decided that this allegation conveniently "overlapped" with an already investigated complaint that the review contained errors.

 
Just for added fun, here's the latest correspondence I had with Wiley who said they were going to investigate my allegation of misconduct against the Editor in Chief. Not sure whether I will receive a response to my latest clarification. I have now explained about 17 times that Cochrane did not investigate the misconduct allegation because the Cochrane co-chairs decided that this allegation conveniently "overlapped" with an already investigated complaint that the review contained errors.


Cochrane’s motto should be:

‘Deny, deflect, ignore’

and everyone around them seems to be enabling this. (Though to be fair Hilda Bastian has now issued some protest, once Cochrane shamelessly abandoned her.)
 
I haven't found a mention of this on the thread (when searching for James C Robertson) but a most absurd response to Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy has been published


Re: Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy​


Dear Editor,

The National Institute of Clinical Excellence ( Nice ) is right re fibromyalgia and ME in that physical lifestyle / ergonomics 24/7 which includes sleep style is the prime cause.

Scientifically this includes biomechanics and ergonomics and these apply to sleepstyle as much as to work and leisure. Children need to be taught and a consensus regarding detail is essential. Patterns of rest and movement are the key to prevention, as is knowledge of what can go wrong.

Just as for passing a driving test, everyone needs to know how to drive their carcasses /bodies and minds through each day and night. This whether they are managing a work force, or a school PT or biology teacher or a parent.

People with discomfort and pain may find that certain longer held postures may promote comfort and allow work and daily obligatory tasks to be performed, but on remobilising pain may occur eg on the walk to get to car train or bus. If these are crowded so standing may occur, sitting is avoided and so movement and posture changes while on the feet avoids neuropraxia. If sat on a seat which is well cushioned and upright then the sciatic nerves may be parked on the stretch. If the passenger then reads his paper or mobile with his forearms resting on his lap and head flexed the central nervous system and the peripheral will be stretched. If sat too still for too long a neuropraxia may occur and the return of the blood supply whille walking may be painful and clumsiness /accident proness may occur. For example a knee might give way and flex unexpectedly, and so avoid a pain but risk a fall and a sprained ankle.

James C Robertson
Ret. Consultant in Rheumatology and Rehabilitation, Salisbury /Southampton

Still a member of BMA, FRCP
Salisbury
 
I haven't found a mention of this on the thread (when searching for James C Robertson) but a most absurd response to Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy has been published


Re: Chronic fatigue syndrome: Outcry over Cochrane decision to abandon review of exercise therapy

Dear Editor,

The National Institute of Clinical Excellence ( Nice ) is right re fibromyalgia and ME in that physical lifestyle / ergonomics 24/7 which includes sleep style is the prime cause.

Scientifically this includes biomechanics and ergonomics and these apply to sleepstyle as much as to work and leisure. Children need to be taught and a consensus regarding detail is essential. Patterns of rest and movement are the key to prevention, as is knowledge of what can go wrong.

Just as for passing a driving test, everyone needs to know how to drive their carcasses /bodies and minds through each day and night. This whether they are managing a work force, or a school PT or biology teacher or a parent.

People with discomfort and pain may find that certain longer held postures may promote comfort and allow work and daily obligatory tasks to be performed, but on remobilising pain may occur eg on the walk to get to car train or bus. If these are crowded so standing may occur, sitting is avoided and so movement and posture changes while on the feet avoids neuropraxia. If sat on a seat which is well cushioned and upright then the sciatic nerves may be parked on the stretch. If the passenger then reads his paper or mobile with his forearms resting on his lap and head flexed the central nervous system and the peripheral will be stretched. If sat too still for too long a neuropraxia may occur and the return of the blood supply whille walking may be painful and clumsiness /accident proness may occur. For example a knee might give way and flex unexpectedly, and so avoid a pain but risk a fall and a sprained ankle.

James C Robertson
Ret. Consultant in Rheumatology and Rehabilitation, Salisbury /Southampton

Still a member of BMA, FRCP
Salisbury
Aside from being a truly ridiculous level of both weird and wrong, what the hell does it even have to do with the topic at hand?

Dude clearly just wanted to rant a bit, although I can't make any sense of what he's trying to say, it's seriously embarrassing to be this irrelevant. This is one of those cases where BMJ should have just politely refused for being oddly off-topic. Or maybe published it as some standalone rant, for some reason.

I don't even know what the equivalent would be for a programmer. It's just stupendously impertinent.
 
Aside from being a truly ridiculous level of both weird and wrong, what the hell does it even have to do with the topic at hand?

Dude clearly just wanted to rant a bit, although I can't make any sense of what he's trying to say, it's seriously embarrassing to be this irrelevant. This is one of those cases where BMJ should have just politely refused for being oddly off-topic. Or maybe published it as some standalone rant, for some reason.

I don't even know what the equivalent would be for a programmer. It's just stupendously impertinent.
It is a bit obscure. His main topic seems to miss some logical consistencies such as

his analogy requires the bus to be so crowded someone has to stand to avoid ‘neuropraxia’

but then he suggests one gets out what I assume is a big broadsheet newspaper instead of a mobile ad it will stretch things out nicely. Not many people would get away with that on a crowded bus whilst standing to wingspan over a metre with a big face level newspsper ignorabt of other standees? Even if the lack of free hand to hold on whilst the bus stops and starts was somehow not an issue

All of course ironically I assume along the lines of what an eccentric older man might do particularly if they’d never actually been on a bus being ‘good’ but the alternative ‘the cause of problems today’ feel to it ?

It’s got nothing to do with me/cfs at all other than the need to take the opportunity to tell one’s random story and it merely just showing personal top tips from a somewhat sheltered slice of life instead of being medical reminds me of some of the Riley stuff where he wasn’t just making taunts/jibes ?
 
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