US: Annual ME/CFS Working Group Meetings from 2020. Stanford/OMF

Link here https://forums.phoenixrising.me/threads/an-announcement-from-ron-davis-phd.81243/

The ME/CFS Collaborative Research Center at Stanford is pleased to announce the 4th Annual ME/CFS Working Group Meeting on the Molecular Basis of ME/CFS.

However, Unfortunately, the Community Day at Stanford has been cancelled due to the pandemic. However, after our Working Group meeting we will investigate whether we can produce a series of videos that will be accessible to everyone. Hopefully next year we will all be able to get together again.

I would like to get the agenda for this meeting, as well as list of participants @Ben H is this possible?

 

I was wondering if this was going to happen this year. Glad to see they're still organizing a meeting. It's a bummer they're not able to have the community day this year. I enjoyed going in the past, both for the science and the chance to meet other patients, some who had traveled from all over the world to be there. That was really special.

 

Where are my Norwegians? Maybe they are participating by Zoom call, but not giving presentations?

 

Maybe someone on twitter could tweet at Janet Dafoe to indicate a couple recordings (not all) of presentations that patients would be interested in hearing, e.g. Mark and Ron Davis and Robert Phair.

 

+1, last year big parts of the event were live streamed.

 

Some slides which appear to come from the symposium have turned up.

https://www.omf.ngo/wp-content/uplo...ium_Stanford-University_Sept-8-11-2020-v6.pdf

Please don't ask me where I found the link. I open links I stumble across in new tabs to read later. By the time later comes around I can't remember the origin of the link. I've googled but can't find any matching talk or speech notes to go with the slides. I did find a public OMF FB post giving the link to the slides but that's all.

The slides are a little difficult to interpret as they are, without further information. But they give intriguing glimpses into what Moreau is working on. All sorts, including the role of thrombospondin-1, a lipid-modyfying enzyme SMPDL3B, sleep disturbances after stressor, and a slide "MiR-140-5p expression could influence Rituximab bioavailability".

 

They've used your avatar @NelliePledge -see slide 5

 

For those who are wondering:

 

Must keep an eye on my sleep records next time I get hit with PEM to see if there's a change to REM sleep. I do know my deep sleep decreases significantly with PEM, I wonder why they didn't look at deep sleep here?

 

Perhaps you found the link from this OMF tweet.
https://twitter.com/user/status/1322179272480575488

 

Agenda. Where are the Norwegians???

https://twitter.com/user/status/1567151341411213313

 

Janet Dafoe doing some live tweeting

https://twitter.com/user/status/1567173340997234688

 

Hannah Davis is there apparently

https://twitter.com/user/status/1567174024182071300

 

In a sea of terrible papers and dreadful medical behaviour it's always nice to see the real researchers get together and swap real ideas. May you find something interesting and inciteful and solve your problems quicker over a beer!

 

Is there evidence of demyelination in MECFS?
From talk by Michael Jensen, Stanford.

https://twitter.com/user/status/1567548013224284160

 

https://twitter.com/user/status/1567943220272955392