A thread on what people with ME/CFS need in the way of service

[Kitty]

Is there any good studies or surveys on antidepressants in MECFS?

Not as far as I know. Doctor used to assume ME/CFS was a form of depression and give them a chemical cosh that caused depersonalisation and derealisation. Telling them you weren't suffering from depression just made them double down.

I did end up with low mood, though, after 18 months of various antidepressants. Once I decided to bin them it took several weeks for my system to normalise, but then I was back to my usual self. But I'm still furious that they were allowed to pressure people who were mentally perfectly healthy into taking drugs with such horrible effects on their wellbeing, function and relationships.

 

[V.R.T.]

I'm reassured people think there will not be anymore bureaucratic obstinacy if we have some decent evidence. I hope that's true. I guess the SequenceME/general MRC letdown has made me cynical.

 

[hotblack]

I'm reassured people think there will not be anymore bureaucratic obstinacy if we have some decent evidence. I hope that's true. I guess the SequenceME/general MRC letdown has made me cynical.

It’s more a case of different organisations and different motivations.