Action for ME (UK) fundraising
- Thread starter Andy
- Start date
Andy
Senior Member (Voting rights)
You can also support them by playing a weekly lottery.
"For every £1 you play each week, you'll receive a unique 6-digit lottery number.
Every Friday, a winning number is drawn at random. Match your digits to win up to £25,000!"
ETA: Edited to insert correct link.
"For every £1 you play each week, you'll receive a unique 6-digit lottery number.
Every Friday, a winning number is drawn at random. Match your digits to win up to £25,000!"
ETA: Edited to insert correct link.
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InitialConditions
Senior Member (Voting Rights)
I think you used the wrong link Andy. Lottery here: https://www.actionforme.org.uk/support-us/other-ways-to-support-us/play-the-unity-lottery/
InitialConditions
Senior Member (Voting Rights)
Not a bad idea really. I have purchased some raffle tickets.
InitialConditions
Senior Member (Voting Rights)
This is Action For ME, one of the two main UK charities, not ME Action. I definitely feel more comfortable donating to AfME than the ME Association these days.
Yann04
Senior Member (Voting Rights)
Yep thats what i meant. edited my post cuz brain fog. (Also what an idea ro name two charities so deceptively similarly lol)
Andy
Senior Member (Voting rights)
Thanks, have edited my post to correct link.
Thanks for this - I've just got round to signing up.
DigitalDrifter
Senior Member (Voting Rights)
What about Invest In ME?
InitialConditions
Senior Member (Voting Rights)
I have donated to IiME before via fundraisers and sponsored events. Being volunteer-led means all money raised goes to research but it also means they are stuck as a small charity and IMO they really need help to overhaul their identity/media.
For historical reasons they also do not seem to want to colloaborate with other charities, whereas personally I do not believe having multiple charities each running their own small research programmes is the optimal approach.
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Yann04
Senior Member (Voting Rights)
Danny is doing amazing fundraising and is right to try to inspire people with similar capabilities to do the same. I'm not sure it's accurate "The majority of research funding for all diseases comes from charities". I think when I was looking in dementia and stroke material, admittedly in the previous decade, they get more from the state than they raise privately? For dementia, it's probably because of economic cost / global targets to find treatment ...I'm not sure why for stroke, whether they sector struggles to fundraiser or whether the state thinks that it needs extra. It also might be because charity costs are going to towards support vs research, I don't know. It's interesting that a disease like Parkinson's, affecting half our numbers, as well as raising a lot of money and getting a lot of state money - (£100/p/yr) also are able to use privately raised money to pay for things like Parkinson's nurses.
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