Well worth a read. Mary Dimmock is very impressive. Good news that she is on the Community Impact Steering Committee at the Jackson Lab. Thanks @Medfeb and @Mfairma.
Mary Dimmock is a serious advocacy hero. The New York State Department of Health website changes will improve clinical care, not just in New York, but throughout the US. The importance of what she has done cannot be overstated.
Great interview with a truly inspiring advocate. I had heard of her 'book' 'Thirty Years of Disdain' which is available free on-line. I've just bookmarked it to start trying to read soon, it's long and detailed and very thoroughly researched. https://www.dropbox.com/s/bycueauxmh49z4l/Thirty Years of Disdain - Background.pdf?dl=0
