Amatica Patient-centred chronic disease research
- Thread starter Mij
- Start date
Mij
Senior Member (Voting Rights)
Mij
Senior Member (Voting Rights)
Results will be released in the following weeks. This is only the first of our many projects that will be gradually released in the coming year. From Jack Hadfield ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder
https://twitter.com/user/status/1850480964306178061
https://twitter.com/user/status/1850480964306178061
Andy
Senior Member (Voting rights)
"ME/CFS and Long COVID 31 Marker Test
What is this test?
This comprehensive panel evaluates 31 biomarkers across interconnected biological systems implicated in ME/CFS and Long COVID pathophysiology.
Overview
The markers span energy metabolism, mitochondrial dynamics, vascular regulation, blood-brain barrier integrity, innate immunity, renin-angiotensin system function, growth factor signalling, oxidative stress, and hypoxia pathways, providing insight into the complex physiological disruptions underlying these chronic conditions.
Information about Joining
Batches and fulfilment will commence once sufficient participants have joined (progress updates will be shared publicly and via the counter below).
Expected turnaround time after all samples collected
Results estimated within 1-3 months of batch initiation.
Global Medical Sample Shipping
We provide medical shipping services to patients worldwide, ensuring a seamless process for delivering samples. Our service includes collecting samples from your specified location - whether it's your home, a blood draw clinic or another site - and handling all aspects of international shipping from there."
Link
All for the low, low price of £1,125....
What is this test?
This comprehensive panel evaluates 31 biomarkers across interconnected biological systems implicated in ME/CFS and Long COVID pathophysiology.
Overview
The markers span energy metabolism, mitochondrial dynamics, vascular regulation, blood-brain barrier integrity, innate immunity, renin-angiotensin system function, growth factor signalling, oxidative stress, and hypoxia pathways, providing insight into the complex physiological disruptions underlying these chronic conditions.
Information about Joining
Batches and fulfilment will commence once sufficient participants have joined (progress updates will be shared publicly and via the counter below).
Expected turnaround time after all samples collected
Results estimated within 1-3 months of batch initiation.
Global Medical Sample Shipping
We provide medical shipping services to patients worldwide, ensuring a seamless process for delivering samples. Our service includes collecting samples from your specified location - whether it's your home, a blood draw clinic or another site - and handling all aspects of international shipping from there."
Link
All for the low, low price of £1,125....
Jonathan Edwards
Senior Member (Voting Rights)
yes
I am aware of 11 cases of blood transfusions improving symptoms in ME/CFS Really want some more anecdotes. If you know of anyone who has done it (without prior blood loss - excessive bleeding etc) or has a physician willing to do transfusion - please dm me!
ChronicallyOverIt
Established Member (Voting Rights)
These guys offered to test twins, and use twin as control? Is this anything?
Mij
Senior Member (Voting Rights)
He's had LC since 2021: "and for the first time in my disease, I finally see a clear path that may lead to recovery".
He's pretty passionate about finding a cure.
ChronicallyOverIt
Established Member (Voting Rights)
So, it looks like it's essentially some people offering tests, with the latest one being genetic data.
I don't think they will have any special insights. They seem to take questionable results from research papers and suggest that they are important scientific insights.
The patients pay for the analysis and this team collect your data, and everyone else's who buys their tests. I don't know if the team makes any money out of it, presumably they make something. Perhaps they are aiming to make a profit eventually, perhaps they already are.
The thing I'd be most worried about is data security. You are trusting these people with your genetic data. Probably they are well meaning. But you are also trusting that they put enough security measures in place so that no one bad ever gets hold of your data, ever, even when they have perhaps lost interest in this effort and moved onto something else.
They have a nutritional therapist on board:
I don't think they will have any special insights. They seem to take questionable results from research papers and suggest that they are important scientific insights.
The patients pay for the analysis and this team collect your data, and everyone else's who buys their tests. I don't know if the team makes any money out of it, presumably they make something. Perhaps they are aiming to make a profit eventually, perhaps they already are.
The thing I'd be most worried about is data security. You are trusting these people with your genetic data. Probably they are well meaning. But you are also trusting that they put enough security measures in place so that no one bad ever gets hold of your data, ever, even when they have perhaps lost interest in this effort and moved onto something else.
They have a nutritional therapist on board:
Mij
Senior Member (Voting Rights)
Already onto batch 4 of the RNA sequencing project.
So thankful to see the uptake on this is in line with how valuable the test can be
The database is on track to reach multiple 100’s of samples this year and already be larger than any RNA Long COVID & ME/CFS database available
So thankful to see the uptake on this is in line with how valuable the test can be
The database is on track to reach multiple 100’s of samples this year and already be larger than any RNA Long COVID & ME/CFS database available
ChronicallyOverIt
Established Member (Voting Rights)
One thing as an engineer that bugs me is this guy Jack markets himself as “ex-aerospace engineer” has never worked in industry, might have a degree but that essentially it. That’s a red flag to begin with for me, selling himself way bigger, reminds me of Silicon Valley hype.
Second they don’t screen for ME/CFS CCC and sell the test to anyone so even if their tests were reliable who knows what they are screening
Second they don’t screen for ME/CFS CCC and sell the test to anyone so even if their tests were reliable who knows what they are screening
ahimsa
Senior Member (Voting Rights)
Yeah, they are also posting on Bluesky:
But eventually he talks about Amatica tests:
"We’re accepting more patient funded slots and you can join"
Is that just a fancy way to say that these tests aren't free? Or am I missing something?
Just FYI, this guy is also posting on Bluesky. He starts out with a screenshot from this article which I found a little confusing (misleading?)
But eventually he talks about Amatica tests:
"We’re accepting more patient funded slots and you can join"
Is that just a fancy way to say that these tests aren't free? Or am I missing something?
Yann04
Senior Member (Voting Rights)
I think he’s making money off selling dodgy tests to patients.
“Patient funded slots” is them buying a test and him keeping the data for “studies” like this.
ChronicallyOverIt
Established Member (Voting Rights)
This post has to be a joke 3 controls and most of the ME/CFS sitting between them.
twitter-thread.com
Acting like you can make anything from this…. This guy getting popular and is just spreading misinformation. I’m worried where this will go.
New @amaticahealth preliminary findings: elevated NKG2A in Long COVID & ME/CFS by @JackHadfield14(Jack | amatica health) | Twitter Thread Reader
New @amaticahealth preliminary findings: elevated NKG2A in Long COVID & ME/CFS NKG2A is a receptor found on NK cells & some T cells. It acts as an "immune system brake" when on This is useful for preventing damage to healthy tissue - but can prevent proper clearance of viruses...
Acting like you can make anything from this…. This guy getting popular and is just spreading misinformation. I’m worried where this will go.
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ChronicallyOverIt
Established Member (Voting Rights)
I don’t think he’s profiting off this tbh, just young naive and over confident. All his posts are just marketing to get more people involved so he’ll connect any and all research to a twitter thread then sell his tests at the end. He has no general understanding of biology and thinking that what he’s doing is real science. His technical breakdowns of papers are surface level mixed with deep research AI thinking.
I just don’t understand how he thinks getting tests from random donors from the internet is going to provide real insights. It’s sadly a bunch of noise and money wasted.
I just don’t understand how he thinks getting tests from random donors from the internet is going to provide real insights. It’s sadly a bunch of noise and money wasted.