Closed An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with ME/CFS

Some of the survey results

HR Monitor use
Over 30 different types of monitor were reported

Time using a monitor:
  • 51%: 0-1 yr
  • 28%: 2-3 yrs
  • 15%: 4 -5 yrs
  • 6%: > 6 yrs
Ease of use:
  • 16%: easy
  • 33%: moderate
  • 18%: hard
  • 18%: difficult
  • 5%: too difficult to continue
  • 8%: too soon to say
Pros and Cons

Over 30 benefits were identified. The main benefits were:
  • Understand PEM triggers better (72%)
  • Real-time feedback on effects of current or prior activity (68%)
Over 30 negatives were identified. The main negatives were:
  • Financial (44%)
  • Initial restrictions by staying below the threshold (42%)
Benefits to using HR Monitors to pace
The survey asked: “Is there anything you can do since HRM Pacing that your illness had prevented you from doing before you started HRM Pacing?”

Over 30 aspects were identified. The main changes were:
  • Improved ability to do Activities of Daily Living or self care (32%)
  • Increased time with family and friends (23%)
  • Able to enjoy a hobby (23%)
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