An ME patient goes on a virtual pilgrimage Ruth Lampard Church Times May 2019

Discussion in 'General ME/CFS news' started by JohnTheJack, May 3, 2019.

  1. JohnTheJack

    JohnTheJack Moderator Staff Member

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  2. Kitty

    Kitty Senior Member (Voting Rights)

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    Lovely story, though it's a shame she had to do it that way. But it's still a pilgrimage, and she obviously got a lot out of it, so hey...you do what you can!
     
  3. RuthT

    RuthT Senior Member (Voting Rights)

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    Thank you!

    Thank you @JohnTheJack for viewing an early draft

    Ed Ann replaced by an
     
    Last edited: May 3, 2019
  4. Andy

    Andy Committee Member

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    While I don't have a faith I enjoyed reading this article, would definitely recommend it.
     
  5. Hutan

    Hutan Moderator Staff Member

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    :)
    Welcome to New Zealand @RuthT
    There's a weekend of nice weather coming.
     
  6. hellytheelephant

    hellytheelephant Senior Member (Voting Rights)

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    What a lovely and hopeful article...and a really thoughtful way to embark on a pilgrimage.
     
  7. Dancer

    Dancer Established Member (Voting Rights)

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    I loved this!!! My hubby and I had begun hiking sections of a long trail before I got ill. Our goal had been to eventually complete all sections. But I no longer can hike more than a mile (and that's only on a very good day) (and many sections require hiking many miles to reach access). This article inspired me to embrace a new way to hike the remaining sections. :) I'm going to start keeping track of our brief walks in our neighborhood, and drawing them on our trail map as if we were making progress.
     
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  8. RuthT

    RuthT Senior Member (Voting Rights)

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    Hooray!
     
  9. RuthT

    RuthT Senior Member (Voting Rights)

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    Thank you! I’m currently
    168.3 along Te Araora Trail, entering Omahuta Forest by Kauri Sanctuary Road. Virtually, of course.

    I’m also following the Royal Albatross Chick webcam at Dunedin, on YouTube.
     

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  10. RuthT

    RuthT Senior Member (Voting Rights)

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    Thank you so much Andy.
     
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  11. RuthT

    RuthT Senior Member (Voting Rights)

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    I came across this piece very recently, but is v important to reflect on the power of good story telling - an important part of Sci-Comm.

    Also important to be ethical & accurate in story telling ...

    https://www.pnas.org/content/111/Supplement_4/13614
     
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  12. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

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    Like @Andy , I do not have a faith, but Ruth always has a lovely honest way of writing and I have thoroughly enjoyed following her pilgrimage(s) via twitter. This is an excellent article to read and share.



    :emoji_wave: @RuthT , London trip for me on Tuesday. Plus, I found out last Saturday, my local colleague has the appointment before me - cue swift hugs in the waiting room :emoji_hugging::emoji_hugging::emoji_hugging:. Lovely to ‘see’ you here x
     
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  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    posting this here as @RuthT might know people who may be interested


    Oct10

    Minstry and ME/Chronic Fatigue Syndrome
    by Diocese of York
    https://www.eventbrite.co.uk/e/minstry-and-mechronic-fatigue-syndrome-tickets-61286233775
     
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  14. NelliePledge

    NelliePledge Moderator Staff Member

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    Well done @RuthT i think there’s a lot of traction to be gained in getting ME awareness higher through working through media aimed at specific groups like you and @chicaguapa are doing it think it is more likely to help get the message taken on by people. and has given me an idea for a more manageable project to do an article for my union magazine that I might take on later this year once I’ve got over Millions Missing.
     
  15. RuthT

    RuthT Senior Member (Voting Rights)

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    Really great news! I think I found it helpful to write for my own reasons of connection, identity & belonging as well as easier to write for a ‘known’ audience, challenging though they may sometimes be!
     
  16. RuthT

    RuthT Senior Member (Voting Rights)

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    Last edited: May 4, 2019
  17. RuthT

    RuthT Senior Member (Voting Rights)

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    Thank you for your kind comments.
    What fun to know another Biobank person! So good to be contributing.

    One day (hope that day will come) it would be great to have a party & all be well enough to see one another, if not to have an *actual* rave. Though would would require a miracle as *not my scene*
     
  18. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

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    Due to a very large County, I have only met my Biobank Colleague twice at our group meets (that’s still an improvement on ‘just’ our virtual meets!), but it is good to compare notes with others.

    I would be very happy with tea and cake :emoji_cake: :emoji_tea: instead of the rave :emoji_dancer::emoji_dancers::emoji_man_dancing:See you there! x
     
  19. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    @RuthT - How long is the Camino de Santiago? Do you know how long it takes the average actual walker to cover it?
     
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  20. RuthT

    RuthT Senior Member (Voting Rights)

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    @Little Bluestem I think most people take 30-5+ days to cover the nearly 800k of the Camino Frances from St Jean Pied de Port to Santiago.
    https://caminoways.com/how-many-days-does-it-take-to-walk-the-camino-de-santiago

    To get the official Pilgrim badge you only need to walk the last 100k.

    Other routes are available from all over.
    Way back I met a family who had cycled from Cologne in 2 week summer holiday breaks, seemed to be good for the teenagers to do a bit each year & arrive I think 3 or 4 years on.
     
    Last edited: May 5, 2019

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