Do you have experiences with Pregabalin or with this problem? I didn't read the nicest things about this drug...
I have totally mixed feelings about this drug. I was on it 5 years ago for migraine and nerve pain.
It was a fantastic drug for the migraine and also helped with some of the ME pain. It also gave me energy, but in a hyper wired way.
The downsides:
* An insatiable appetite, hunger 24/7. And even though i didnt eat more (back then i had to choose between my ME supplements or food as i was in dire poverty) I still put on weight and the weight kept increasing.
I was stick thin to begin with but I put on over a stone in weight and i’ve been trying to remove it for the last 5 years (was only on the drug for about 2 months)
I’ve only just this year got back down to my original weight, through fasting and keto.
* A feeling of increased energy and being hyper to the point of bouncing off the walls. At first i thought it was a miracle drug, I’d spent 15 years barely having the strength to talk then within days not being able to stop talking!!!! I was even starting to irritate myself! It was great fun, and such a novelty but I repeatedly suffered PEM because of it.
* Altered consciousness: its as though whatever level of consciousness i live in, that has enabled and housed the migraines since I was 4 years old, was completely switched off and changed to a different level of consciousness.
I was still me, but my consciousness was different in a way that words can’t describe.
After a couple of weeks, i had 2 strange experiences.
I was standing at the top of the stairs, (i live alone) and from nowhere, i felt the pressure of an open hand on my back, that tried to push me down the stairs. If i wasn’t holding on at the time i don’t know what would have happened. It really scared me.
A week later, i was out with my partner. Enjoying my new fake energy. I was standing at the side of a road waiting to cross. A double decker bus was passing. Just before the bus reached where we were standing, that same invisible hand pushed me out into the road. If my partner hadn’t pulled me back, i’d be dead.
Each time was very distinct, and both times i felt the exact shape of a hand in the middle of my back between the shoulder blades and was pushed exactly the way a person would push me.
At the time, I looked it up and it said a rare side effect can be suicide. Which got me thinking that I would have been one of those statistics had i not been lucky. Both of those experiences could have passed as a suicide and i wouldn’t have been around to be able to explain otherwise, which creeped me out at the time wondering if others had had an experience similar to mine but weren’t as lucky.
Its such a shame as the drug was very effective for pain but it wasn’t worth living in the twilight zone for.
I did mean to experiment at the time with varying doses or similar drugs but i was very nervous.
So yeah, its a great drug. I actually really liked it! But the associated strangeness for me was just too much (not to mention dangerous) so if you do try it, maybe start on as low a dose as possible and watch your back (literally lol)
I consider taking Pregabalin in the hope the leg may "recover". The idea is to take it only for a short time, not highly dosed.
