Anyone else experienced a paralysis feeling at the top of the back of the legs

[AliceLily]

It only happened to me when walking up a hill. Also I only experienced this in my early years of ME (25 years ago) when I didn't know I had ME and I was still trying to hold down full time work.

I never experienced it again after very severe ME. I am thinking that it may be that at very severe ME I became bedridden and since then have had to rest a lot.

Just to explain further, when walking up a hill I would suddenly find it incredibly difficult to bring each leg forward. It felt like a paralysis at the top part of the back of my legs. I used look around to see if anyone was watching me because I felt like I was having to slow motion each leg forward. I wonder what could have been happening. It only happened when I was walking up a hill. I've never it experienced it since.

Curious to know if anyone else has had this happen to them.

Please excuse me if I don't reply to posts for awhile and thanks for any comment.

 

[Milo]

It only happened to me when walking up a hill. Also I only experienced this in my early years of ME (25 years ago) when I didn't know I had ME and I was still trying to hold down full time work.

I never experienced it again after very severe ME. I am thinking that it may be that at very severe ME I became bedridden and since then have had to rest a lot.

Just to explain further, when walking up a hill I would suddenly find it incredibly difficult to bring each leg forward. It felt like a paralysis at the top part of the back of my legs. I used look around to see if anyone was watching me because I felt like I was having to slow motion each leg forward. I wonder what could have been happening. It only happened when I was walking up a hill. I've never it experienced it since.

Curious to know if anyone else has had this happen to them.

Please excuse me if I don't reply to posts for awhile and thanks for any comment.

It has not happened to me like this but I understand that walking uphill is a bigger demand on your body, specifically your leg muscles and it may mean that you are exerting beyond your capacities.

In my case at my sickest, I have experience some sort of a 'wall' where my legs no longer wanted to walk, and just standing would make my legs fill up with lactic acid.

I am avoiding going up stairs and walking up hills as much as I can, and certainly know to perform these slowly if I have to.

 

[MeSci]

I'm not sure what feeling I get, but I have to stop and turn round and wait for about half a minute several times when walking up the long hill into town. There is only one place where I can sit and rest briefly before continuing (a low wall). Basically my legs run out of strength or energy. It's a bit like cramp.

I feel the weakness/pain at the backs of my knees.

 

[Mij]

@Rosie

I've had some leg muscle issues and changes in my stamina since menopause. It's difficult to explain. Sometimes when climbing stairs I have to go full-stop.

 

[Wonko]

Yes, but rare now that I do less, am housebound.

Walking, uphill, stairs sometimes - oddly doing squats with a fair amount of weight never caused it, so it would seem to be a sustained repetition thing rather than purely a loading thing.

I don't do hills these days (at least for now), barely do walking, and as all the local stairs are outside, a place I rarely venture...... - so it doesn't really happen anymore.

 

[DokaGirl]

It only happened to me when walking up a hill. Also I only experienced this in my early years of ME (25 years ago) when I didn't know I had ME and I was still trying to hold down full time work.

I never experienced it again after very severe ME. I am thinking that it may be that at very severe ME I became bedridden and since then have had to rest a lot.

Just to explain further, when walking up a hill I would suddenly find it incredibly difficult to bring each leg forward. It felt like a paralysis at the top part of the back of my legs. I used look around to see if anyone was watching me because I felt like I was having to slow motion each leg forward. I wonder what could have been happening. It only happened when I was walking up a hill. I've never it experienced it since.

Curious to know if anyone else has had this happen to them.

Please excuse me if I don't reply to posts for awhile and thanks for any comment.

I haven't experienced leg paralysis. But, I have often become so weak and fatigued that I cannot move much further, and have to rest. At these times, my legs feel leaden and almost too heavy to lift another step.

Walking uphill as @Milo said, is also painful for me. Lactic acid build up I suspect. Even walking in my house can make my leg muscles burn.

Debilitating symptoms and dysfunction, that is difficult to explain to the uninitiated.

 

[AliceLily]

@Milo @MeSci @Mij @Wonko @DokaGirl Thanks. After reading your experiences I think I must have been experiencing lactic acid build up. Most likely to have been that. I was trying to carry on a normal day in those earlier years, big mistake. Thanks again.