Apps used by NHS clinics for ME/CFS and Long Covid

John Mac

John Mac

Senior Member (Voting Rights)
Moved posts to start a new thread to collect discussions of NHS apps

Mersey Care's Long Covid Service launches new exercise App for patients

Mersey Care’s Long COVID service has developed content for an online app to help speed up the recovery of patients suffering from the effects of the debilitating condition.

Working in partnership with Physitrack, the Long COVID service have filmed a series of breathing, movement and mindfulness videos that have been uploaded to the app, known as PhysiApp, allowing patients to see therapists performing the movements and techniques demonstrated in clinic.

The team can remotely monitor their patients’ activity via the new dashboard as they work through their tailored plan, which also allows them to comment on how they feel whilst participating in the movement and techniques.

“The resources we’re making available on the app, allow us to work closely with our patients to develop a personalised treatment plan, that can address not just physical symptoms but also emotional and mental wellbeing,” explained Dr Chris Barker, Mersey Care’s Clinical Director.

“The Long COVID service aims to empower patients with the knowledge and confidence to help manage their symptoms and regain control of their health.”

https://www.merseycare.nhs.uk/long-covid-app#:~:text=“The Long COVID service aims,regain control of their health.”
 
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John Mac said:
The team can remotely monitor their patients’ activity via the new dashboard as they work through their tailored plan, which also allows them to comment on how they feel whilst participating in the movement and techniques.
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Who wants to be under medical surveillance all the time? It sounds dystopian.

Firing squad at dawn for those who don't do their exercise!
 
NelliePledge said:
Ah ok so this app is ok yet someone was only saying the other day that when they mentioned visible it was pooh poohed as something you can get too focused on
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Ah, yes, focus for all 3 minutes it takes to do the morning and evening check-ins.

When you look at the excuses given out in recent years, they seem to believe that it's professional monitoring that matters. As long as they're monitoring, it's all good. Or something like it. Even though the vast majority of cases never get any because the resources will never exist for it. But it's still critical, unless people are self-sufficient.

Heads they win. Tails you lose. Don't flip they win and you lose.
 
8 July 2024, Merseyside Care Launch an Elaros Alternative and announce closure

If you think you’re suffering from any of these symptoms, please go and see your GP for a referral.

The app with all the exercises, breathing techniques and mindfulness is available to patients of Mersey Care’s Long Covid service.

Merseyside Physi-app.jpg

Referrals into one of their clinics are made via your GP, who will need to confirm it has been over 12 weeks since your Covid symptoms started.

For more information about Mersey Care's Long Covid Service, including how to be referred to our clinics, what symptoms would you have, frequently asked questions and videos to watch, please go to their dedicated webpage.

Long Covid Service

The Long Covid Service, provided by Mersey Care NHS Trust, no longer operates due to funding being discontinued.

This webpage will remain functional until 31 March 2026 and is for information only.

If you require support for Long Covid, or think you may have Long Covid, please arrange an appointment with your GP at the earliest opportunity.

Please see information below about the FREE symptom monitoring app and other resources that may be of assistance.
 
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Please see information below about the FREE symptom monitoring app and other resources that may be of assistance.

C19-YRS symptom monitoring app

The C19-YRS app is recommended by NHS England, and Mersey Care has funded it for 12 months so that you can access it free of charge until July 2026.

The app allows you to:

* Monitor and track symptoms and functional abilities

* Complete clinically recognised assessments

* Access helpful resources and videos

* Generate reports that you can share with healthcare professionals, if needed.

To get started with the app:

1. Download the app for Android or Apple. Alternatively, you can access it via your browser at webapp.c19-yrs.com

2. When registering, select “I would like to register at a centre” and enter the Centre PIN: Mersey_LC25.

3. Follow the steps to complete your registration and begin using the app.

A step-by-step guide is also available.

If you have any queries and require user support, contact c19-yrs@elaros.com
 
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So that is 2 apps paid for by the local NHS commissioners, to replace a service with an expanding clientele

It is amazing - despite wide-spread rejection of "useless" service it persists by convincing the local NHS sub-contractor that it is popular and effective and valuable.

This Merseyside version looks a bit like break-dancing on a chair, the version which won a world cup and a global outcry:
Merseyside NHS app for cancelled Long Covid service.jpg
We need an audience so we can tell ill people to breathe, to move, be mindful, practice being, and how, but we found it necessary to do this from a safe distance. We know our locals

And we only enlighten people who are well enough to use an app. No we do not hand out I-Phones, but if you can use an app then you are well enough to be recovered, however if you are too ill to use an app then .....(redacted, there is no alternative, the NHS is not a bottomless pocket, take back the Falklands... dit..dit..dit)
 
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