Thirteen-year-old Mira is a Long Covid patient in Switzerland. According to estimates, around 18,000 children and adolescents in the country may be affected. Many families report feeling left alone, not taken seriously, and confronted with a lack of willingness to properly investigate their children’s symptoms.
Mira was first infected with the coronavirus at age nine. After an initial recovery, her symptoms returned and lasted ten months. She suffered constant severe headaches, exercise intolerance, fatigue, and “brain fog.” At times, she could barely move between her bed and the sofa. After ten months, her condition improved and she was symptom-free for 14 months. In January 2024, she was infected again and has not fully recovered since. Her symptoms included exhaustion, sleep disturbances, cognitive decline, and a gait disorder. She often needed a wheelchair.
Her family sought medical help multiple times. At the Universitäts-Kinderspital beider Basel (UKBB), they felt Long Covid was dismissed and her gait disorder was described as psychosomatic. Her wheelchair was reportedly taken away during her stay, and she was made to walk despite exhaustion. Mira said she did not feel taken seriously. After ten days, her mother took her home. She later received a Long Covid diagnosis from a specialist in another canton and is now treated by a doctor in Liestal.
The association Long Covid Kids Schweiz reports that many affected families experience stigmatization and that children are often not taken seriously. Some are labeled as school refusers, and in certain cases parents have even lost custody rights. The association calls for greater recognition of Long Covid and ME/CFS as physical illnesses and for improved knowledge among medical professionals.
In Basel, few cases are officially known to the association, and the region is described as a “blank spot” in terms of diagnosis. The UKBB stated that it has received no formal complaint regarding the reported case and that there is no indication of a structural problem in handling Long Covid. Basel-Stadt officials say that complex cases are referred to the UKBB and that most children show improvement within a year, though no comprehensive cantonal data exist.
At the national level, the Swiss government has been tasked with developing a strategy to improve the situation of people with ME/CFS and Long Covid. The goal is to ensure equal medical care across the country, including timely diagnosis and access to evidence-based therapies.
Mira currently attends secondary school twice a week. Her school is described as understanding, but her request to follow lessons online from home was rejected for data protection reasons. Her family continues to focus on rebuilding her health, while hoping for further improvement.