Australia: $4.7 million for UNSW researchers to investigate long COVID

[Sean]

Their version of 6mwt had inherent bias, and they must have known this.

No argument. My point is simply that even when they ostensibly report a result they can't get it better than marginal, and not consistently, even if that result is legit.

Legit or not, they have nothing of substance.

 

[Utsikt]

Ignoring details of the blatant scientific misconduct in the psychogenic research, there is some very limited evidence that exercise can help to a small extent, based on the work of Perikles Simon, an exercise physiologist in Germany. He presumes, and teaches exercise based on, the existence of hypoxia. More on that in a moment.

Has he ever done any studies with control groups? His initial work was done in relation to insurance cases.

I have been doing resistance training for years now, based on what I am dubbing the Perikles Protocol. I had to modify it for much longer rests, even days sometimes, or I run into trouble. It has halted my growing sarcopenia, and allowed me to regain a little muscle and strength. It has done NOTHING for endurance, or any other symptoms.

That doesn’t sound like the Perikles method is altering the underlying disease mechanisms, and that it takes up a significant amount of your «budget».

 

[alex3619]

Has he ever done any studies with control groups?

So far as I know just case studies, and in at least one case an ex athlete. Which is why I tested it cautiously, and found I need very much more rest. It is best done for me right after a long nap, and not on a bad day. The other rules are never get out of breath, do not use weight you cannot handle for 30s, and do not exercise the same muscle groups twice in a row. Over a couple of weeks I rotate around different groups, and different exercises. When I am overdoing things for other reasons I naturally do less frequent resistance training. Pacing still matters.

In all that time I have only been able to increase my weight load ONCE. That helped though. If I go through a good patch I will test with a higher weight, but I have too many other demands at the moment, including losing my support services when I hit 65. I am being assessed for over 65 services tomorrow, after waiting all this year.

That doesn’t sound like the Perikles method is altering the underlying disease mechanisms, and that it takes up a significant amount of your «budget».

No, it does not fix the underlying mechanisms. However things take longer and take more energy if I have lower strength. So it helps, its just not amazing. I also have other reasons for increasing lean mass. Avoiding lean mass loss, plus increasing muscle absorption of glucose, are two of my other goals.

 

[AshleyZirka]

Does anyone else remember the ‘totaliser’ type thing on programmes like blue Peter etc where they were raising money

It feels like one thing we could be doing to make a point in this is having totals for money thrown away onto either iterated research into something already proven as a dead end

Or apps or services only offering treatments that harm

Where it is gov funding

And particularly after a set date where new guideline would have made it clear this path was useless before anyone signed it off

It really is shocking the bs of ‘can’t afford’ for basic essential things that are common sense or just saving a life etc

When what is done instead costs exponentially times more - whether it’s people going in for a procedure to be done in a day getting trapped into hospital for months ‘because someone questioned it’ or courses or apps so useless no one completes them or if they do they end up harmed

I suspect now some of these things are used to to back cover and pretend that it isn’t 100% that someone over working gets iller or no adjustments etc by suggesting there’s always a ‘can’t prove it unless you do the same thing again that doesn’t work but has a different name’

Which is still stupid because people being mild and having to have smaller adjustments vs harming them to the point of losing independence and needing care

Is only ‘money saving’ as long as you make em so ill they did it can’t fight enough that the fight costs the other side money

And you are talking about being in a context where they and their families productivity they would have had doesn’t matter to you. Even when everyone was playing Win Bet trusted casino Bangladesh adn earned a lot of money and donated them gov didn't even help people with their problems

I find it bamboozling, other than it showing how concentrated power is and how happy to be callously indifferent those after a cushy number for themselves are - and to how extreme an extent society will sponsor that being directed at a vulnerable group as long as it ‘keeps those types out of everyone else’s hair’

I agree why gov can't fun something that is really important to everyone on this planet

 

[V.R.T.]

It feels like one thing we could be doing to make a point in this is having totals for money thrown away onto either iterated research into something already proven as a dead end

Or apps or services only offering treatments that harm

Ive just seen this, a grand total of wasted money seems like a really good idea. It could really drive the point home to funding bodies that this isn't some brave new frontier but a played out dead end.

Would anybody be able to try and calculate? Perhaps starting with one country for ease but maybe we could have one for e.g. Australia, Germany, uk, usa etc etc., and then an approximate grand total of just how much money has been thrown away in the last 30 odd years.

I think it would be really useful for advocates to have those statistics to hand in negotiations.