BACME, National Conference 14-15th March 2018, ‘Changing Times’

Andy

Andy

Senior Member (Voting rights)
https://www.bacme.info/upcoming-events, information from https://www.bacme.info/civicrm/event/info?id=2 (file will automatically download if this link is followed).



National Conference 14-15th March 2018, Liverpool

‘Changing Times’



The Science…

Prof Ben Z Katz, Children’s Hospital of Chicago, USA

Paediatric chronic fatigue syndrome after Epstein-Barr virus infection.

Dr Gerard Clarke, University College Cork, Ireland

Brain-gut-microbiome axis, stress and IBS.

Dr Emma Dures, University of the West of England, Bristol, UK

Support for self-management to reduce fatigue in arthritis.

Prof Per Fink, Aarhus University, Denmark

and

Dr Joshua D Milner, National Institute of Allergy and Infectious Disease, USA

IN DEBATE: psychology vs biology: how can we meet and move forward?



Plus: research update by Deb Roberts and panel, scientific posters and prize-winner presentation.


The Skills…

Workshop options include:

Fiona Wright, occupational therapist Mindfulness

Deborah Taylor, occupational therapist Therapy outcome measures

Dr Maria Loades, clinical psychologist/lecturer Anxiety and depression in paediatric CFS/ME

Dr Lucy Clark, exercise physiologist GETSET

Dr Vikki McKeever, GP with special interest Clinical conundrums

Plus: another option and larger workshop(s) TBC

The Services…

Rob Coster, NHS England Specialist Care Programme, UK

How are specialist services commissioned?

David Butcher, Optimum Health Clinic, UK

The 2020health report on the costs of CFS/ME to society.

Dr Pawel Zalewski, Nicolaus Copernicus University, Poland

CFS/ME in Poland: identifying need and developing services.

Plus: BACME national services survey, service narrative posters, and prize-winning presentation.


The Society…

Spread throughout the conference will be several opportunities to get involved in the future direction of BACME, to vote on surveys, and in the BACME AGM.

Survey topics include: merging our national conference with the UK CFS/ME Research Collaborative (CMRC); and, how best to meet the training and educational needs of our members.

Networking breaks are built into our programme, and there will also be a free drinks reception with local musicians.

There will be no conference dinner to allow everyone the opportunity of eating out in smaller groups, and enjoying this exciting and historic city.


**Early Bird Prices available NOW!!!**

Until Friday 19th January 2018 5pm

Members £250 full / £138 daily

Non-members £310 full / £178 daily


Mercure Atlantic Tower Hotel has reduced room rates for delegates at £95 per night until end 2017.

The Liverpool Tourist information centres and Visit Liverpool will be happy to advise on other accommodation and restaurants, and assist with reservations.

See www.visitliverpool.com
 
Cheshire said:
WTF
Seriously, the etiology is unimportant only if you think the disorder is primarily psychological.
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I thought there was a number of WTF moments just in the simple conference details. :)

MEpedia has this on Milner
Joshua David Milner, MD, is chief of the Genetics and Pathogenesis of Allergy Section in the National Institute of Allergy and Infectious Disease within the United States National Institutes of Health. His research interests include T-cell receptor signalling and repertoires, and atopy (hyperallergy).

Dr Milner is one of the Associate Investigators assigned to the NIH Post-Infectious ME/CFS Study[1] and serves as an alternate to Joseph Breen, Ph.D., on the Trans-NIH ME/CFS Working Group[2]
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And in response to "psychology vs biology: how can we meet and move forward?", I would suggest psychology should get the heck out of the way and allow biology to move forward by itself. Psychologists have done enough harm, it's time for the adults to actually get on with the job of figuring ME out.
 
IN DEBATE: psychology vs biology: how can we meet and move forward?
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This basically means when people want to debate us the following talk will describe the tactics that we use to avoid content debates at all cost and churn out nonsense about it being unhelpful to see things as either psychological or physiological and how to go around doing presentations like Crawley does them. How to avoid FOIs etc.

It will basically be a sales pitch on how they protect their market.

I could write this presentation for them now by listing some words like functional, biological, sleep hygiene, evidence based, militants, vexatious, then throw in some bla bla bla waffle to make the speech not seem like a hypnotist trick of sound bites for their chosen audience.
 
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IN DEBATE: psychology vs biology: how can we meet and move forward?
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Well when David Tuller turns up with some polite questions that is a meeting. Asking him to leave and threatening him with the police is how not to move forward.

Oh, sorry, just realised, the "we" in that sentence is how can the BPS crew and Fingers Crawley continue to move forward. You can't, you've been rumbled, sorry.
 
Prof Per Fink, Aarhus University, Denmark

and

Dr Joshua D Milner, National Institute of Allergy and Infectious Disease, USA

IN DEBATE: psychology vs biology: how can we meet and move forward?
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So, is there any proposition there?

BACME are such a shameful joke. I feel bad for any decent person sucked in to attending.

Survey topics include: merging our national conference with the UK CFS/ME Research Collaborative (CMRC); and, how best to meet the training and educational needs of our members.
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Just end your conference and stop pretending you have the ability to meet the training and educational needs of your members. It's time to recognise you've got life wrong and shut up shop.
 
Andy said:
Prof Per Fink, Aarhus University, Denmark

and

Dr Joshua D Milner, National Institute of Allergy and Infectious Disease, USA

IN DEBATE: psychology vs biology: how can we meet and move forward?
Click to expand...

It is not psychology versus biology. It is poor science versus good science.

This is not a negotiation to save the psychs' arses and give them a face-saving out, because they will just go and do it all over again to another bunch of unsuspecting patients. They need to learn the lesson, the hard way if necessary:

They must meet the technical and ethical standards of good science, including transparency, or get out of the game.

There is no alternative. That is how it must be done.

:grumpy:
 
edit: wrong thread. I was talking to someone who was feeling pretty miserable after reading this conference report. They seemed to be hoping that it start with "Okay, we admit it, we've got things badly wrong."
 
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On a brighter note, there are hints in the topic titles that some of the old guard are feeling threatened by recent developments in the field. They're not mentioning the actual elephant itself, but they're hinting at a large grey thing. This is encouraging, no?
 
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