Blog: All The Time and None At All, Jenny Spotila

http://occupyme.net/2018/04/25/all-the-time-and-none-at-all/

 

I was diagnosed in 1993 as a young woman in my early 20's- I can't believe I am now 50 and there is still no treatment.

 

Depressing, hope ME Action and Solve can change things....

 

I hear ya, @hellytheelephant !

Illness onset Jan. 1990 at age 29 for me. Then it was five years before I was even diagnosed.

So, yes, it does seem unreal that there has been so little research and so little is known about ME/CFS.

In fact, most of the time my medical care is like that old vaudeville joke:

Patient: Doctor, it hurts when I do this!
Doctor: Then don't do it!

I guess I'm lucky because at least that's better than CBT/GET:

Patient: Doctor, it hurts when I do this!
Doctor: Are you sure? Maybe you just have a phobia? Try doing even MORE!