Sasha
Senior Member (Voting Rights)
About 2/3 of PwME had acute viral onset to our decades of crippling disability, and so it amazes me that we're not on the priority list for either vaccines or drugs such as Paxlovid for acute Covid.
Whatever the genes are for getting chronically smashed up by viruses, we've clearly got them.
If we want to get on that priority list, we need to take action because, as usual, no one will come to save us.
We need data to show what our risk is of bad acute and chronic outcomes of Covid, and what that risk is relative to other diseases on the priority list.
Are there existing big databases that could show this and, if not, could we ask for an ME/CFS question to be added to data collection on Covid? What about Prof Tim Spector's ZOE project?
@Jonathan Edwards, any thoughts on this? @Andy, @Simon M, any outreach/collaboration that DecodeME could do?
Whatever the genes are for getting chronically smashed up by viruses, we've clearly got them.
If we want to get on that priority list, we need to take action because, as usual, no one will come to save us.
We need data to show what our risk is of bad acute and chronic outcomes of Covid, and what that risk is relative to other diseases on the priority list.
Are there existing big databases that could show this and, if not, could we ask for an ME/CFS question to be added to data collection on Covid? What about Prof Tim Spector's ZOE project?
@Jonathan Edwards, any thoughts on this? @Andy, @Simon M, any outreach/collaboration that DecodeME could do?