Sasha
Senior Member (Voting Rights)
Interesting!
https://www.mefm.bc.ca/single-post/2017/11/06/Survey-Responses-from-UBC-TIMEFORUNREST-Screening
Particularly:
https://www.mefm.bc.ca/single-post/2017/11/06/Survey-Responses-from-UBC-TIMEFORUNREST-Screening
Particularly:
MEFM said:What is the most surprising thing you learnt tonight?
- How widespread the condition is
- I saw the poster showing 560,000 Canadians have ME but the movie really helped demonstrate how devastating it is.
- Existence of Complex Chronic Diseases clinic
- The prevalence - 2 x more than MS!!
- How severe + disabling it can be
- How prevalent and extreme it is! 17 million people!
- How much ME can change your life and how people ignore it because it's an invisible disease.
- I was shocked to see how severe this conditions impacts people and how little health care professionals know about this condition.
- The prevalence of ME and all the symptoms that ME comes with
- The severity possible
- The prevalence? Yes so many deny it exists.
- This is super prevalent but I hear so little about it
- Denmark case = patient removed from home was horrifying + traumatizing. Also the gender-relation in care shocked and angered me.
- Exercise is the worst advice for this conditions
- I was not aware of the severity and how wide the spectrum is.
- The severity of the illness, and its prevalence.
- How differently patients can present with symptoms and now resilient the patients are in the face of ME.
- That there doesn't really seem to be any definitive treatment.