Claim (PACE) ME/CFS cured by changing mind on way out HealthInsightUK Blog post by Jerome Burne (2019)

@Arnie Pye @BruceInOz thanks so much for the tips re twitter

 

Article in 'Alliance for natural health' which appears to be selling 'natural products' (ie they appear to be promoting anti 'drug based' treatments). I haven't read all their blurb but no doubt someone will!

Nevertheless, good that Jeromes piece is being picked up and particularly criticism of the PACE trial

https://www.anhinternational.org/news/pharmascope-the-tool-that-may-have-blinded-your-doctor/

 

I think that for the PACE authors and their ilk, the sh*t has now just about reached the fan.

 

Possibly, but the PACErs are in a bunker, in another country, busy peer reviewing their own papers on why fans are an artifact of disordered mental processes best treated by graded running around therapy.

So they probably won't notice.

 

They just might be heading for extradition.

 

28 April 2019 at 6:49 pm

Thank you for this short pithy response to Jerome's excellent resume'.
'The claim that the cure for the crippling fatigue of ME/CFS was to change your mind always seemed bizarre. Now it really is on the way out…'

Oh,.... if only .....and... I wish! NICE is currently repeating the mistakes from the past in it's appraoch to the NICE Guidance Review for ME and CFS.
The ME Community is fearful of the likely hi jacking and outcome.

Meanwhile, the ME Community is pulling together to help fund the necessary challenge to all this nonsense- Trial By Error: Reporting on ME/CFS and Related Controversies https://crowdfund.berkeley.edu/project/14941
It has 2 days to run and to meet it's goal!

While Trial By Error began 3+ years ago as an in-depth look at the PACE trial, it has expanded to include other research from the GET/CBT ideological brigades and some of the controversies around the illness or cluster of illnesses known variously as ME, CFS, ME/CFS, and CFS/ME.

Please support this very worthy appeal please, because, 'we' ME and CFS patients and families are worth it!

( Sorry mods if this is on the wrong thread! Cats!)

 

I thought this was a further testimony to our "activism', '.......vexacious or not'!
I might ask permission to lift this and put it on our NHS Service blog and website!



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Powerful corporate and governmental forces dictate the ways in which our societies operate. They dictate the way most of the world’s food is produced and delivered to us and the ways in which health authorities and the medical mainstream propose that health and disease should be managed."