Dare to hope... what amazingly great thing might happen in S4ME's first year?

Valentijn said:
We don't have rules regarding language, and I think it's fine for people to post in something other than English if they're more comfortable doing that. People can use Google Translate to get a decent understanding of what's been said.
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I think that's great! Also, others can pitch in. I would be happy to hack away at people's posts in the languages I claim to be able to speak.

Its so much easier to translate into your own L1 than it is to do it in the other direction (L1= first language!)
 
MErmaid said:
I would assume the people who have significantly improved and resumed their lives would not want to look back.
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I would hope that a large enough proportion of them would not. One of the Norwegian patients who had a complete recovery and went back to work as a Dr raised the money and the profile of Fluge and Mella's work. Without her getting better then giving back we might not be as far ahead as we are now.

edited to add:

Also we may not see a 'cure' in the traditional sense, more a remission. Once M.E is well understood and seen as biomedical disease process like MS then people wont run away from their dx. They will perhaps think of themselves as a PWME in remission, rather than running a mile as soon as they feel better (no pun intended with my metaphor)
 
S4ME... 5 Years on ! And a big thank you to all involved in set up, moderation and continuation!

Also let us not forget those we have lost along the way, and why we are all here and still fighting!
RIP Graham et al ......


1. https://www.scottishlegal.com/articles/david-j-black-pace-gate-have-we-been-waddelled

David J Black: PACE-gate. Have we been Waddelled?
16 Mar 2022

Reading time: 9 minutes
David J Black
David J Black continues to investigate the biggest medical scandal of the 21st century. Read part one here and see also his series from last year for SLN.


2.https://www.scottishlegal.com/articles/david-j-black-welcome-to-the-machine

David J Black: Welcome to the machine
22 Mar 2022

Reading time: 11 minutes
'Prone to making the facts fit their theories, academics have, for decades, gaslit ME/CFS sufferers by telling them their condition was all in their heads. To compound matters, a pliant British media happily preached the false biopsychosocial gospel and misery ensued. But the pandemic has changed everything: MPs have today called on the UK government to spend £100 million a year to research treatments for Long Covid – a sum that will hopefully put paid to an era of lies. Read the last part in David J Black’s series for SLN'.


3.https://www.scottishlegal.com/articles/david-j-black-fact-law-and-a-spoonful-of-jurisprudence

David J Black: Fact, law, and a spoonful of jurisprudence
29 Mar 2022

Reading time: 11 minutes
David J Black
The final part in David J Black’s forensic examination of the ME/CFS scandal looks at alleged scientific misconduct and a possible cover-up. Read the last part here.

Moderator note: To discuss these articles by David Black, go to this thread:
Blog series: "Orthodoxy on trial: the pathogenesis of a diagnosis" by David Black
 
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arewenearlythereyet said:
I would hope to see

  • NICE remove GET from the guidelines before the formal review
  • ME/CFS removed from MUS in the UK
  • The science media centre discredited in the media and called out for the sham it is
  • those that squandered public funds via the PACE trial called out for the frauds they are
  • Positive results from the ritixumab trial leading to more biologically based UK research into the disease and a subsequent drop off in funding for psychiatrists
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Quality Audit ?
It pays to revisit the past S4ME postings!

4 out of 5 ? not bad going!?
 
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