Data/info request from Robert Phair for Relapse/Remit people

I had sudden onset (EBV) in 1995 and was moderate-severe for 3.5 years. Then I went into partial remission (though I thought I had recovered): I wasn’t able to work full time, but could work part time and have a full life, but I was still exercise intolerant and experienced PEM. I’ve had three relapses: the first two were mild (I was able to keep working, but rested a lot and cut back on activity generally). They each lasted about 6 months. The last relapse (5 years ago) started mild. I tried the same approach as the previous two, with resting and cutting back, but it didn’t work. After six months, instead of recovering and going back into partial remission, I worsened and became severe. The time between each relapse has been longer each time.

 

Could there be a difference between gradual slow and sudden viral onset? From reading the responses it appears those of us with sudden viral onset experience partial or 90% remission?

I didn't experience PEM until I was 90% improved and started exercising again. That was 5.5 years after onset.

Do we need to set up another poll?