Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

Discussion in 'Research methodology news and research' started by Hutan, Dec 22, 2024.

  1. Hutan

    Hutan Moderator Staff Member

    Messages:
    30,835
    Location:
    Aotearoa New Zealand
    Thanks for the link to the San code for research @bicentennial
    Requiring researchers to front up and share their research with the participants and community prior to publication is one good way to make research better.

    I agree @Ravn, we need to find ways to do the things you list. I'd love to do a study of some of those things.
    It's just finding those 'stream-lined ways to be easy for everyone'.

    There's also this thread with an idea quite similar to the San's code
    Making a 'Charter for Ethical ME/CFS Research'
     
    Ravn, Peter Trewhitt and bobbler like this.
  2. bicentennial

    bicentennial Senior Member (Voting Rights)

    Messages:
    192
    .
    And also we too have a controversialised history for which:

    - either we have enough capabiity to service it
    - or we need the service that does

    - if it needs paying for, it means we have the capability but not the spare capacity however this is not breaking boulders, it has been pioneered already, there is a prototype can be adapted and a map, here:

    Parallel Histories : THEY did it SO ... ... they DID it

    41.png

    Parallel Histories is a UK charity
    - registration number 1174481

    hugh@parallelhistories.org.uk

    This service could produce a module to bring the ethics committees (and their upstream governances and all associated) up to date up this steep learning curve still putting them off otherwise, then they can all make their decisions fully informed and impartial, at long long last, so if the UK won't pay for it I could chip in a bit

    - if so the time is rip-ripe to ask ethical funders to fund it for its totally unique competency - if only it can produce the module to educate the whole hierarchy governing the guidance and evaluation of ethical heath research in our particular - most oddly schismatic - splintered field, too :

    I think maybe a Parallel Histories module on ME / CFS is also perfect for all the fields of the UK, all in need of it so extensive was the designated splintering, and it would be freely available on the word-wide web (I've not checked their existing module thumbnails but it looks free)

    If so the time is rip-ripe to put our very Health, Education and Employment Ministers into the UK Delivery huddle that comes out cudddling (us) unmuddling and puddling in a rush to put the money where the mouth is :

    into the UK Delivery Plan for ME/CFS

    So I will link it here when I find the place to post the next arm of this type of Parallel Histories service eg to reach from the top down to and through our ethical nurseries, schools, adult education, higher education, medical training, clinics, social services (community care), safeguarding, paramedics, police, courts, prisons, landlords, farms, all emergency services, long list so please finish it, sometime, all fields need scientifically validated ethical criteria in case of encountering ME/CFS and its slang

    Oh I forgot the Delivery Plan has a Research arm too, so it CAN fund Parallel Histories for production of the ME/CFS module (with free online xxx xxx and presence) to so vastly edify the whole field of ethics guidance - in health-research evaluation - it shall be wholly relieved of its tormenting, unsubstantiated, vile and obstructive, cognitive dissonance and so shall we, and the whole public may participate. This is the neutral mission of Parallel Histories, because all agree that cognitive dissonance is not good
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    *Nordic
    good news
    more good news

    EDIT : to replace lost attachment... and move a comma
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    Last edited: Jan 6, 2025
    Peter Trewhitt likes this.

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